FTD bliver ofte fejldiagnosticeret som Alzheimers, depression, Parkinsons sygdom eller en psykiatrisk tilstand. I gennemsnit tager det i øjeblikket 3,6 år at få en præcis diagnose.

Partnere i FTD Care

AFTD's Partners in FTD Care er udviklet af et udvalg af kliniske sygeplejersker, undervisere, socialarbejdere og familie- og professionelle omsorgspersoner, med bidrag fra eksterne specialister for at fremme større viden og forståelse af FTD og dele bedste plejepraksis.

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Plejetilgange: Medarbejderudbrændthed og værdien af et partnerskab mellem personale og omsorgsperson

For health care professionals providing FTD care during this time, it is important to recognize the difficulties COVID-19 poses for persons diagnosed and their families. Practicing open and honest communication is crucial, as fostering a sense of trust will help to ensure all parties feel informed, supported, and heard, and can lead to conversations that…

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Det er OK Ikke at være OK: Håndtering af sorg og tab midt i FTD og COVID

You have chosen an incredibly meaningful line of work, which not only supports persons diagnosed with FTD but also their families. While it is truly an honor to be part of the care and treatment of the families you serve, it can also take an emotional, physical, and spiritual toll, especially during this highly demanding…

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Plejetilgange: COVID-beredskab og pleje af faciliteter

For families navigating an FTD diagnosis, the decision to move a loved one into a long-term care (LTC) facility can be made even more difficult by the COVID-19 pandemic, as recently addressed by Carmela Tartaglia, MD, FRCPC, of the University of Toronto, in a letter published on AFTD’s website. When helping families prepare for long-term care,…

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Casestudie: Livet under en pandemi – FTD-plejehjem midt i COVID-19

Across the U.S., long-term care facilities have emerged as hotspots for the spread of COVID-19, significantly disrupting their usual routines. For people living with FTD who are in such facilities, measures taken to control the virus can be profoundly confusing, isolating, and anxiety-making, particularly as the circumstances around the pandemic change on a near-daily basis….

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AFTD-ressource: Hvad skal man gøre ved håndtering af resistent adfærd

Persons diagnosed with frontotemporal degeneration (FTD) may resist family members or healthcare professionals who attempt to provide care or take steps to ensure their safety (for example, by hiding their car keys or removing weapons from the house). Care-resistant behaviors are relatively common in FTD, a result of numerous symptoms that characterize the disease, including…

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Plejemetoder: Yderligere hjemme- og samfundsbaserede plejemuligheder for resistent adfærd

Having to manage the resistant behaviors of a person with FTD can directly impact the health and well-being of both the person diagnosed and their caregiver. Caregivers must feel as safe and healthy—both physically and mentally—as possible in order to properly tend to the well-being of the person with FTD. Having additional in-home care and…

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FTD Symptom Management
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