The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Emma Heming Willis Shares Family Updates on The Oprah Podcast

Emma Heming Willis, Bruce Willis’s wife and caregiver, was interviewed by Oprah Winfrey on “The Oprah Podcast” yesterday about her family’s journey with FTD. Mrs. Willis is currently making a…

AFTD Grantee Discusses Use of Proteins for Diagnosing FTD and Tracking Severity in Interview

Rowan Saloner, PhD, recipient of AFTD’s 2024 Clinical Research Training Scholarship in FTD, discusses how measuring protein levels in cerebrospinal fluid (CSF) can help diagnose FTD in a recent interview with…

Guest Feature: Learning to live with familial FTD

The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate…

California FTD Awareness Week Resolution - FBLI

AFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution

AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year…

Emma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special

Emma Heming Willis was interviewed Tuesday night, August 26, on “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” sharing her family’s experience of living with FTD.…

Book About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission

“No Fault of His Own,” a novel released this summer, was the focus of a recent AFTD fundraiser organized by its author Gina Biskupic, a speech and language pathologist and…

The Lived Experience of FTD: Talk Therapy in FTD – Risks and Benefits

The following article was written by Anne Fargusson, RN, a member of AFTD Persons with FTD Advisory Council. You can learn more about Anne and her colleagues by visiting the…

Ferrer PSP Drug Receives Fast Track Designation from U.S. FDA

Spanish pharmaceutical company Ferrer announced that its experimental drug for progressive supranuclear palsy (PSP) has received a Fast Track designation from the United States Food and Drug Administration (FDA). …

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