degeneration of the frontal
and/or temporal lobes of the brain.
this journey alone.
and support for families facing FTD.
Initial Family Statement
Read about Emma Heming Willis' book tour
Learn more about FTD
Susan Dickinson to Retire in May 2026
Read the Full Report
FTD Disorders Registry, President
Johns Hopkins University’s Frontotemporal Dementia and Young-Onset Dementias Clinic, Director
News & Events
Volunteer Update: AFTD Welcomes New AFTD Ambassadors
Since its launch in 2019, the AFTD Ambassador program has grown into a dynamic force for change. In just five years, a small group of dedicated volunteers has evolved into…
MOREAFTD CEO Susan Dickinson Featured on Dementia Untangled Podcast
AFTD CEO Susan L-J Dickinson, MSGC, recently joined hosts Heather Mulder and Janice Greenough on the Dementia Untangled podcast to discuss FTD, sharing insights about diagnosis challenges, the impact on…
MOREDear HelpLine: Sharing the Diagnosis
Dear HelpLine, My wife was diagnosed with FTD this past year and we will be seeing family over the holidays. This will be the first time we will be seeing…
MOREBobby Kimball, Toto’s Original Lead Singer, Living with FTD
The FTD community extends its heartfelt support to Bobby Kimball, original lead vocalist of the band Toto, and his family as the world learns more about the singer’s journey with…
MOREUnderstanding and Responding to FTD Behaviors
Behavioral symptoms associated with FTD often present significant challenges, not only for the individual diagnosed but also for their care partners. FTD behaviors, such as disinhibition, apathy, compulsivity, or loss…
MOREAFTD Grantee Leads Basic Science Study Exploring Role of Protein in Tau-Based Disorders like CBD
A recent study examines the role of chromogranin A (CgA) in disorders caused by dysfunctional tau protein. The study expands our foundational knowledge of these forms of FTD and opens…
MOREPave the Path Forward This Giving Tuesday
AFTD Persons with FTD Advisory Council member Sandy Howe and her husband, Dirk, are sharing their story this Giving Tuesday to raise awareness about FTD and provide support for other…
MORELove Will End FTD: Katie Brandt on Caregiving, Loss, and Leading Change
Katie Brandt, an active and longtime AFTD volunteer, was interviewed on the podcast Navigating the World With Your Aging Loved One. She spoke with host Nicole Will about what it…
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