The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, June 26, 2025
12-1 p.m. EDT

HEALTHCARE PROFESSIONAL WEBINAR

Speech Language Therapy:

Stephanie M. Grasso

A Promising Practice in FTD Treatment and Care

Becky Khayum, M.S., CCC-SLP

Dr. Anna Volkmer

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Holloway Summit Topics Published in Journal  - FBLI - 2

“Alzheimer’s & Dementia” Publishes Summary of AFTD’s 2022 Holloway Summit

Digital health technologies have the potential to benefit the FTD community by improving accessibility to research and clinical care. Such technologies were the focus of the 2022 Holloway Summit —…

Leonard A. Lauder, 1933-2025

Leonard A. Lauder, a legend of the cosmetics industry who invested hundreds of millions of dollars into research seeking a cure for FTD and other dementias through his Alzheimer’s Drug…

Vesper Bio Clinical Trial for FTD-GRN Treatment Achieves Enrollment Milestone

Danish biotechnology company Vesper Bio announced that it reached a participation milestone in its phase Ib/IIa clinical trial evaluating a treatment for FTD-GRN. Six participants have been enrolled in the…

Advancing Hope: Blood Test for Diagnosing Alzheimer’s Disease Approved by FDA

The United States Food and Drug Administration (FDA) approved the marketing of a blood test to diagnose Alzheimer’s disease. The test, known as the Lumipulse® G pTau 217/β-Amyloid 1-42 Plasma…

British Study Evaluates Ability of Novel Protein Assay to Capture Blood-Based Dementia Biomarkers

A study published in the journal Alzheimer’s & Dementia evaluates the ability of a novel protein assay to detect and analyze blood-based biomarkers of dementias, including FTD. Blood Biomarkers as…

Photograph of former Rep. Jennifer Wexton

Former U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine

Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP) diagnosis, was featured on the cover of the April/May issue of Brain &…

Dear HelpLine: The GUIDE Model and FTD

Dear HelpLine, My neurologist’s office recently told me about something called GUIDE, for people with dementia. I’m wondering if this program could help with FTD. Where can I learn more? …

Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment

Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was…

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