The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, July 31, 2025
3:00 - 4:00 p.m. ET

How to Connect with Legislators and Create Change

AFTD advocacy webinar

Sharing Your Story to Make a Difference:

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief

When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart…

The Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD

In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their…

Dear HelpLine: Comstock Grants

Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more?…

Advancing Hope: AFTD Attends the Tau Global Conference

In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS),…

Brain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study

According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes…

AviadoBio Featured in the UK Guardian - FBLI

Promising FTD Gene Therapy from AviadoBio Featured in the UK Guardian

In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101,…

FTD Science Digest: Help Advance Science by Joining the Updated FTD Disorders Registry

It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than…

FTD Research Spotlight: A New Researcher Portal and Other Updates from the FTD Disorders Registry

It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than…

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