The Association for Frontotemporal Degeneration

September 22 – September 29, 2024

World FTD Awareness Week

We’re in this together. #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Medical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s

In an interview with Neurology Live, Advanced Brain Monitoring CEO Chris Berka shares insights from a pilot study that found how electroencephalography (EEG) can be used to differentiate between FTD,…

A Conversation with Juan Chavez, MD, of Passage Bio

AFTD recently spoke with Passage Bio Vice President of Clinical Development Juan Chavez, MD, about the company’s work to develop a therapy addressing FTD. Here, Dr. Chavez shares where he…

Acurastem Receives CIRM Grant for Targeted Therapeutic Program for ALS/FTD

Biotechnology company AcuraStem announced that it has received a $4 million grant from the California Institute for Regenerative Medicine (CIRM) for its targeted therapeutic program for ALS and FTD. The…

Dear HelpLine: Social Security Benefits for People with FTD

Dear HelpLine, My dad is 55 and had to leave his job after he was diagnosed with FTD. Are there Social Security benefits that we are eligible for? As a…

Spencer Cline completes bike ride for FTD

AFTD Ambassador Completes Two-Month Cross-Country Bike Ride for FTD Awareness

AFTD Ambassador Spencer Cline wanted to raise FTD awareness and honor the memory of his father. Lawrence Cline was diagnosed with FTD at age 50 and died in 2012, when…

Guest Feature: Creating Opportunities of Liberation and Hope on the FTD Journey

The FTD journey is difficult for families due to its distressing symptoms and the sweeping life changes that are often required to adapt to them. Families often find that there…

U.K. Man Discusses FTD Caregiving with BBC and Yahoo! Life

An FTD caregiver in the United Kingdom spoke about the disease’s emotional and financial impact in recent interviews with the BBC and Yahoo! Life. Gareth Heslop, of Sheffield, UK, said…

In Memory of George F. Sidoris: A Siblings’ Labor of Love

More than 20 years ago, siblings Christine and George J. Sidoris first noticed troubling changes in their father’s behavior during a family gathering. “Normally, when my brother and his family…

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