AFTD Director of Research Engagement Shana Dodge, PhD, presented data suggesting that obtaining an FTD diagnosis can be more difficult for Latino Americans in a June 4 interview with KJZZ, a Phoenix-based National Public Radio member station. Drawing from data originally gathered for the FTD Insights Survey, conducted by AFTD and the FTD Disorders Registry…

The story of a literature professor who received FTD care in his last years from a previously incarcerated person he had befriended while co-running a prison arts program was recently recounted in the Atavist, an online publication focused on long-form journalism. The professor, Buzz Alexander, co-founded the University of Michigan’s Prison Creative Arts Project (PCAP)…

Scientists from Monash University in Australia are investigating whether the dietary supplement sodium selenate could be a useful treatment option for some persons living with behavioral variant FTD (bvFTD). In a recent study published in Alzheimer’s and Dementia: Translational Research and Clinical Interventions, researchers presented findings from a small, uncontrolled, preliminary clinical trial. Sodium selenate…

AFTD Senior Director of Scientific Initiatives Penny Dacks, PhD, discussed the overlapping disease pathology between ALS and FTD during an interview conducted at the 2022 Target ALS Annual Meeting, held May 3-5 in Cambridge, Massachusetts. During the conversation with Target ALS Director of Communications Steve Schonberg, available to watch on the Target ALS YouTube channel,…

May is ALS Awareness Month, a time to raise awareness about amyotrophic lateral sclerosis (ALS), and during this month, AFTD is raising awareness around an ALS with FTD diagnosis. ALS and FTD share an overlapping disease pathology. The C9orf72 gene is the most common gene that causes familial FTD, ALS, and ALS with FTD. As…

FTD data focused on the perspectives of Latino Americans living with and impacted by FTD was presented at the third Latinos & Alzheimer’s Symposium. FTD Disorders Registry Director Dianna Wheaton, MS, PhD, CHES, virtually presented a poster titled “Perceptions of Frontotemporal Degeneration Among Latino Americans: A Sub-Cohort Assessment of the FTD Insights Survey” at the…