The Association for Frontotemporal Degeneration

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Denver, CO

AFTD 2025
Education Conference

Connect · Learn · Engage

May 1-2, 2025

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

March 21, 2025 | 3:00 – 4:00 p.m. ET

Perspectives in Research Webinar

AFTD and You:

Partners in Drug Development

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

AFTD Joins Nearly 150 Supporters in Letter Urging Congress to Reject Medicaid and SNAP Cuts

AFTD joined nearly 150 organizations and individuals in a letter penned by the Alliance for Aging Research urging congressional leaders to reject proposed cuts to Medicaid and the Supplemental Nutrition…

Text: Overeating and Other Temptations in FTD - by Anne Fargusson, RN | Background: A photo of Anne Fargusson, RN

The Lived Experience of FTD: Overeating and Other Temptations in FTD

By Anne Fargusson, RN, AFTD Persons with FTD Advisory Council Among the hallmark symptoms of FTD is an oral fixation, which can lead to overeating. FTD may also cause a…

Advancing Hope: AFTD Hosts 2025 Holloway Summit

Can the risk of developing FTD be changed by environmental exposures, lifestyle, diet, and other factors? Are the genetic risks fully understood? These questions are regularly asked by affected families…

Pair of Studies Make Significant Findings in Search for FTD Biomarkers

Two recent studies on proteins and FTD are helping to lay the foundation for the potential development of diagnostic and prognostic FTD biomarkers, a Feb. 9 Alzforum post reported. Studies…

Dear HelpLine: Looking for Support Options

Dear HelpLine, My brother was diagnosed with FTD. I see that AFTD offers support groups, but I’m not sure who they are for, or which one is right for me.…

Study Examines Nature of Criminal Risk Behaviors in Dementia

An Australian Study uses an experimental screening tool to examine the propensity and nature of criminal risk behaviors in dementias like FTD. While further research is needed to better understand…

Text: Statement from The Association for Frontotemporal Degeneration on Disruption of Scientific Research Funding and Activities

Statement from The Association for Frontotemporal Degeneration (AFTD) on Disruption of Scientific Research Funding and Activities

The Association for Frontotemporal Degeneration (AFTD) is deeply concerned about recent policy changes and layoffs at the National Institutes of Health (NIH) that greatly disrupt biomedical research of high importance…

Text: The Story Behind the Story - Our Journey Through FTD and Why I Wrote "Welcome to the Honey B & B" by Melody Carson | Background: Melody Carson

Guest Feature: The Story Behind the Story – Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B”

Novelist Melody Carlson drew from her family’s FTD story to write her latest book, Welcome to the Honey B & B, which will be released on March 4 by Baker…

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