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The most common dementia for those under 60?

It's not Alzheimer's.

News & Events

AFTD Webinar: Maximizing Communication, Maintaining Connection — Person-Centered Care for PPA

Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome, which can be caused by Alzheimer’s disease or frontotemporal degeneration. The progressive loss of language experienced by those with PPA negatively impacts communication and quality of life. In this webinar, guest presenters Dr. Darby Morhardt and Dr. Emily Rogalski of Northwestern University describe clinical features…


AFTD News: Summer 2022, Vol. 19, Issue 2

In this issue: First Annual Holloway Summit Focuses on Digital Assessment Tools for FTD; 1,200+ Join AFTD’s Annual Education Conference to Connect, Learn, and Engage; Spotlight on… Jary Larsen, PhD, AFTD Board of Directors; AFTD Awards Latest Round of Pilot Grants; CECs Available for Some AFTD Webinars; Support for the FTD Journey; AFTD-Supported Study Identifies…


AFTD’s HelpLine: A Vital Resource for Families Facing FTD

Since 2005, AFTD’s HelpLine has been an essential source of support and information for persons living with FTD, their care partners and caregivers, and healthcare professionals who want to better understand the disease. The only FTD-focused helpline available in the U.S., the AFTD HelpLine is a free service available by dialing 866-507-7222 or by emailing…


Support for the FTD Journey

“This disease hits people when they are in the prime of their life. It can be financially devastating for so many.” – Mark P., current FTD caregiver In 2015, Mark P.’s wife Julia, who was working as a real estate agent, had trouble focusing and organizing her busy schedule. Following a series of appointments with…


Spotlight on… Jary Larsen, PhD, AFTD Board of Directors

Jary Larsen’s late brother Peter learned to play the clarinet and saxophone as an adult. A life-long jazz and classical music fan, Peter soon became adept at both. But he gradually lost the ability to play the instruments, or even put them together, as his FTD symptoms worsened. Peter died in 2013 at the age…


First Annual Holloway Summit Focuses on Digital Assessment Tools for FTD

Leaders in FTD science, neurodegenerative disease research, and digital tool development gathered in Miami on May 18-20 for the first annual Holloway Summit, to discuss digital assessment tools and their potential applications in tracking FTD symptoms and aiding in clinical trials. Hosted by AFTD Board member Kristin Holloway, the 2022 Holloway Summit was the first…


Detroit Sportswriter Honors Late Cousin and Shares Family’s FTD History

Shawn Windsor, a sportswriter for the Detroit Free Press, recently paid tribute to his late cousin, who died of FTD in June at age 52 — one of many FTD-related deaths his family has endured. In the June 8 article, Windsor recalls the year he spent as a nine-year-old boy living in Nashville with his…


Finding the Way: Successfully Transitioning to Residential Care

Partners in FTD Care, Summer 2022 Download the full issue (pdf) For families facing FTD, the decision to transition into a residential care facility is often a challenging one, fraught with emotional stress and logistical concerns. But steps can be taken by facility staff to ease that transition. Employing a person-centered, individualized care plan, combined…


AARP Publishes Workbook to Help Caregivers Track Finances

AARP has published a new booklet of worksheets designed to help family caregivers and care partners plan and track their finances and other critical aspects of caregiving. “Each set of worksheets is designed for you to capture the essential information you need to manage the complex responsibilities of caregiving,” AARP says in its introduction to…


Prominent Philly Cheesesteak Purveyor Dies of FTD

Rick Olivieri, the former owner of Rick’s Original Philly Steaks in Philadelphia and a member of an iconic cheesesteak-selling family, died on June 12 at age 57, after living with FTD symptoms for nearly 10 years. “He was the most interesting person I’ve ever met,” his wife and former caregiver, Debi Olivieri, told the Philadelphia…


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Personal Stories

from others whose lives have been touched by FTD


Messages of Hope