News & Events

Help & Support: Genetic Information – Understanding My Rights 

Obtaining genetic information showing if you or your family could have a genetic form of FTD can help in confirming a diagnosis, beginning financial and/or reproductive planning, and knowing if…

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FTD More Common in Europe than Previously Thought, Study Says

FTD disorders are more common in Europe than previously thought, according to a recent study published in JAMA Neurology. As the research community pioneers better screening methods and continues the…

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You’re Invited to AFTD’s 2023 Education Conference

Are you a person with FTD? Are you unsure how this came about for you? Are you wondering about your future? Do you feel all alone? I would like to…

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Remembering Dr. Geri Hall, Long-Time Friend of AFTD

Geraldine “Geri” Hall, PhD, a longtime associate of AFTD and a well-established voice in the field of neurodegenerative disease care, died on November 10 at 76. For years, Dr. Hall…

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Study Evaluates Use of Serum Blood Samples as FTD Diagnostic Tool

In a recent study, researchers evaluated whether measuring TDP-43 in serum samples (blood samples from which certain components, like clotting agents or cells, have been removed) can be used to…

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Writer Shares How Dementia Turned Her Life Upside Down in HuffPost Article

Writer Jan M. Flynn shared how the dementias affecting her two sisters – including corticobasal degeneration (CBD) — has turned her and her family’s life upside down in an article…

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FTD Advocates Nominated for Singaporean of the Year Award

A pair of self-advocates diagnosed with dementia have been nominated by The Straits Times for the periodical’s Singaporean of the Year award. Alison Lim, who founded the organization Dementia &…

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Help & Support: Finding Home and Community-Based FTD Care Options

Although many families are interested in finding in-home or community-based FTD care options, the process of obtaining appropriate services for their loved one can be daunting. AFTD’s HelpLine (866.507.7222; [email protected])…

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AFTD Ambassador Shares FTD Journey in Podcast Interview

AFTD Ambassador Deb Scharper shared insights she gained as a former FTD care partner for her husband, Tommy during an interview on RAREcast, a podcast focusing on rare diseases. Scharper…

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Tips & Advice: Managing Compulsive Behaviors

As FTD progresses, ritualistic and compulsive behaviors may develop, which can present as simple repetitive tendencies (clapping, snapping fingers) or more complex ritualistic activities (strict eating routines, walking specific routes…

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