News & Events
Rev. Jesse Jackson, Diagnosed with PSP, Dies at 84
The FTD community mourns the passing of the Rev. Jesse Jackson Sr., who died peacefully on the morning of February 17, 2026, surrounded by his family. He was 84. The…
California State Sens. Roger Niello and Ben Allen Introduce Bipartisan Bill to Expand the California Neurodegenerative Disease Registry to Include Frontotemporal Degeneration Diagnoses
Senators Roger Niello (R–Fair Oaks) and Ben Allen (D–Santa Monica) have jointly introduced legislation (Senate Bill 1047) in the California Senate that would require the California Neurodegenerative Disease Registry to…
Lessons From a Caregiver
Like a new parent, Linda Osmundson set out on her caregiving journey with no experience, she said in an essay in Today’s Caregiver. But unlike parenting, there are relatively few…
Community Connection: A Golf Fundraiser That Became a Labor of Love
In 2000, George F. Sidoris was diagnosed with Pick’s Disease (now called FTD). When he passed in 2005, his children George Sidoris and Christine Sidoris chose to continue his story…
Fundraising On The Run: 7 Marathons in 7 Days on 7 Continents
Fundraising really doesn’t have to be this hard. Bryan Metoyer has just finished the World Marathon Challenge—an incredible achievement made even more meaningful by his goal in taking it on,…
US FDA Accepts Investigational New Drug Application for Coya Therapeutics’ Experimental Therapy for FTD
Biotechnology company Coya Therapeutics announced that the United States Food and Drug Administration had accepted its investigational new drug (IND) application for its COYA 302 experimental therapy for FTD. The…
Recognizing the Easily Mistaken Signs of Young-Onset Dementia
Signs of young-onset dementias such as FTD are difficult to diagnose, according to an article on The Telegraph website (paywall; one week free access with registration), because few think of…
Advancing Hope: FTD Staff attend the Amyotrophic Lateral Sclerosis Motor Neuron Disease Annual Symposium
Shana Dodge, PhD, AFTD’s Director of Research Engagement, and Kim Jenny, MS, LCGC, AFTD’s Manager of Genetic Initiatives, attended the Amyotrophic Lateral Sclerosis Motor Neuron Disease Annual Symposium, held in…
