degeneration of the frontal
and/or temporal lobes of the brain.
this journey alone.
and support for families facing FTD.
Initial Family Statement
Read about Emma Heming Willis' book tour
Learn more about FTD
Susan Dickinson to Retire in May 2026
12-1 p.m.
Read the Full Report
News & Events
GUIDE: A New Medicare Pilot Program Can Help Families Facing FTD
Professionals who work in the community know that dementia support services can be fragmented and difficult for families to navigate. Needed services are often provided by a variety of different…
MOREFTD Call To Action Featured In Canadian Media
In an opinion piece published recently in the Edmonton (Alberta, CA) Journal, Naomi Mison called for reform of the bureaucracy and improvement of dementia care access in Canada. She should know: Her…
MOREAARP Highlights What FTD Caregivers Need to Know
It’s subtle changes in speech and behavior, not memory loss, that is often the first sign of FTD, said AARP in a recent article on its website. FTD is less…
MOREAFTD Grantee Contributes to Study on Impact of Neuropsychiatric Symptoms in PSP
A study published in the European Journal of Neurology analyzes the impact of neuropsychiatric symptoms like depression and anxiety on the quality of life of people living with progressive supranuclear…
MOREAFTD’s Esther Kane and Volunteer Liz Zadnik Interviewed on Podcast
In a recent episode of Honestly Aging by Friends Life Care VigR®, AFTD Support & Education Director Esther Kane, and AFTD Ambassador Liz Zadnik shared a mic with host Cheryl…
MOREThe Lived FTD Experience: FTD in the Arts
Science tells us that neurodegenerative disease can sometimes reveal unexplored creative talents, and that creating art can be a useful diversion from stress and grief. For those reasons, starting in…
MOREBrain Donation is Final Gift of 24-Year-Old Diagnosed with FTD
Brain donation can be a selfless act born of tragedy. The story of Andre Yarham has captured the attention of media outlets across the United Kingdom, highlighting both the reach of FTD into young adulthood, and the…
MOREArt as Hope: Emma Heming Willis Featured in CNN’s The Story Is with Elex Michaelson on FTD In the Arts
Art can reveal the “whole person” that lies beneath their infirmity or grief, said Emma Heming Willis, wife of Bruce Willis, last week. She was featured yesterday on CNN’s The…
MORE