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The most common dementia for those under 60?

It's not Alzheimer's.

News & Events

Follow AFTD on TikTok and Contribute Your Own Stories 

AFTD has launched a new social media account on TikTok to help spread awareness of FTD online and get more people to #AskAboutFTD.  @theaftd debuted on TikTok during World FTD…

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BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease 

The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a former professional rugby player who was diagnosed with motor neuron disease (MND).   Rob…

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FDA Announcement on ALS Drug Reflects Growing Hope for Treatments

The FDA’s recent approval of a new drug to treat ALS signals important and promising developments for our community. In clinical trials, the drug, which will be marketed as Relyvrio…

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AFTD Pleased to Announce New Brand Ambassador Nicole Petrie

ADTD is pleased to announce an official partnership with Nicole Petrie, a social media influencer and AFTD volunteer who is also a care partner for her mother. Over the next…

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AFTD Ambassador Shares FTD Information, Experiences on Facebook Live 

AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts Alzheimer’s Center to talk about FTD and share his firsthand experiences as a…

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Karate Black Belt Shares His Experiences with Motor Neuron Disease 

A karate ace in the UK shared his experiences of wanting to help people and stay active after his motor neuron disease (MND) diagnosis.   The first signs that Liam Blaney…

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Finding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community 

An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when trying to find long-term care for FTD and other dementias.   Care partner…

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At International Dementia Conference, Panelists Call for More Funding and Training for Specialized Dementia Care 

Panelists at the International Dementia Conference in Sydney called for increased funding and training to address the need for greater access to specialized dementia care.   FTD care partner Lynne Sewell…

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Care Partner Shares How Cultural Disconnect Makes Dementia Care Harder for AAPI Community 

A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can make dementia care more difficult for the Asian American and Pacific Islander (AAPI)…

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Advocate Talks About Experience with Isolation and FTD in the LGBTQIA+ Community  

Dementia advocate Patrick Ettenes recently shared his experience with FTD with the Times of Malta, and underscored the need for better support for people with dementia in the LGBTQIA+ community.…

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Personal Stories

from others whose lives have been touched by FTD

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Messages of Hope