The Association for Frontotemporal Degeneration

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November 28, 2023

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

December 7, 2023 | 3-4 p.m. ET

HEALTHCARE PROFESSIONAL WEBINAR

Approaching a Cure:

FTD Genetics and Clinical Trials

Dr. Peter Ljubenkov

Kim Jenny, MS, LCGC

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Graphic: AFTD volunteer and former FTD care partners discusses importance of self-care in podcast interview

AFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview

Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…

Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way

The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…

FBLI November 2023 PSP and CBS Clinical Trials

Perspectives in FTD Research Webinar: Why PSP and CBS Clinical Trials Matter

Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…

Volunteer Update: Hosting an Information Table Event

Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness to their hometowns. AFTD volunteers can use information tables to engage, educate, and…

Pilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care

A pilot study published in the journal Alzheimer’s & Dementia: Translational Research and Clinical Interventions tests if the remote support program “Virtual Caregiver Coach for You” (ViCCY) was effective in…

Emma Heming Willis Shares Insights from Her Family’s FTD Journey in Essay

In an essay published in Maria Shriver’s Sunday Paper, Emma Heming Willis shared some insights she has gathered while navigating the FTD journey following the diagnosis of her husband, the…

Dear HelpLine – Support for Veterans

Dear HelpLine, My loved one is a veteran. Do we qualify for any support? Navigating the Department of Veterans Affairs, and the benefits you or your loved one might be…

Provide Help and Bring Hope with a Year-End Gift

AFTD was founded more than 20 years ago with a single donation. Since then, the dedication and generosity of our volunteers, donors, and partners have enabled us to better meet…

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