Ways to Participate

Participate to Help Drive Breakthroughs in FTD Research

Scientists are closer than ever to breakthroughs that will bring meaningful change to families facing FTD. Participation from the AFTD community makes their work possible!

Join the FTD Disorders Registry
Participate in clinical trials
Seek genetic counseling
Enroll in a brain donation program
Participate in other types of research
Your lived experience matters
Stay up to date on FTD research information

Why Participating in Research Matters

FTD research is gaining momentum, with more opportunities than ever for everyone to participate in a study that can lead to a breakthrough. The National Institutes of Health (NIH) has doubled the number of FTD projects they have funded from a decade ago, and a growing number of private companies are investing in finding treatments for different forms of FTD.

We need all hands on deck – as successfully testing these treatments will require research volunteers from across the US and around the globe.

Who can participate in research studies?
Why is there so much emphasis on people with genetic variants?
Why should I consider genetic counseling?
Is participating in research safe?
What are the benefits of participating in FTD research?