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Guest Feature: Filmmaker and FTD Caregiver Shares Story of Love and Connection in “Pedacito de Carne”
Living with FTD can be exhausting, challenging, and at times deeply upsetting for people with a diagnosis, care partners, and family members. Yet, despite the many obstacles created by FTD,…
“Motivated by Love, Driven by Anger” – News Report Highlights Advocacy Efforts of Milwaukee Couple on FTD Journey
A June 30 report by the Milwaukee news station TMJ4 highlighted the advocacy efforts of church administrator and care partner Larry Gnatzig and his husband Jeff Tucker, who was diagnosed…
AFTD and AviadoBio Discuss Therapeutic Treatment Protocols for FTD
AFTD recently spoke with AviadoBio Chief Executive Officer Lisa Deschamps about her colleagues’ work to develop a therapeutic and treatment protocol targeting FTD. *Responses have been edited for clarity and…
Groundbreaking Drug That Slows Progression of Alzheimer’s Receives Full FDA Approval
The U.S. Food and Drug Administration (FDA) has, for the first time, fully approved a drug that slows the progression of Alzheimer’s disease. The drug, lecanemab, will be marketed under…
Help & Support: AFTD Resources for Kids and Teens
Unlike other types of dementia, FTD most often occurs in middle age, when many families have children or teens at home. Families with young children and teens face unique challenges…
Tips & Advice: Finding Support for Your FTD Journey
Isolation is common for persons diagnosed, care partners, and family members on the FTD journey, as FTD is a disease relatively few people have heard of and even fewer truly…
Advancing Hope: AFTD and Packard Center for ALS Co-Host Innovative Interdisciplinary Workshop
The abnormal accumulation of the protein TDP-43 occurs in both FTD and amyotrophic lateral sclerosis (ALS), suggesting that disruptions in TDP-43 function may be at the heart of both disorders.…
Aphasia Awareness Month: Resources and Guidance for Managing Primary Progressive Aphasia
June is Aphasia Awareness Month, bringing awareness of language-based disorders to people around the U.S. While many Americans have not heard of aphasia, even fewer know about primary progressive aphasia…
Watch Recordings from AFTD’s 2023 Education Conference
AFTD held its 2023 Education Conference on May 5, both in person in St. Louis and virtually. You can watch all of the recorded conference sessions by visiting this YouTube…
Advocacy Update: AFTD Meets with NY State Senator Michelle Hinchey for FTD Week Announcement
AFTD staff and volunteers traveled to Albany on May 22 to meet with New York State Senator Michelle Hinchey as she recalled Senate Resolution 992 declaring September 24 – October 1…
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