What's New
Advancing Hope: AFTD announces recipients of 2022 Pilot Grants
AFTD Pilot Grants provide critical support for FTD investigators who have completed their training and are in the early stages of establishing an independent research career. Receiving a Pilot Grant…
Help & Support: AFTD Quality of Life Grants Now Provide Better Benefits to People with FTD
AFTD’s Comstock Grant program, which offers modest financial assistance to people with FTD and their care partners, has benefited hundreds of families through its Respite Grants, Travel Grants, and Quality of…
People with Non-English First Language Have Delayed bvFTD Symptom Onset, Study Shows
Researchers at the University of Sydney discovered that Australians born overseas who spoke a first language other than English could tolerate neurodegeneration longer before behavioral variant FTD (bvFTD) symptoms begin…
Nation’s Leading Frontotemporal Dementia Organization Adds Four Board Members to Help Further Its Mission
The Association for Frontotemporal Degeneration (AFTD) has welcomed four additions to its Board of Directors, further bolstering its commitment to supporting a community of people diagnosed with frontotemporal degeneration (FTD),…
“I Vowed to Take Care of Him; Then He Filed for Divorce” – Article Shares Woman’s Tumultuous FTD Journey
In a recent article published on the website The Cut, author Katherine Nichols shares the tumultuous FTD journey that followed her husband’s diagnosis. When their relationship began, Nichols and her…
Iowa Woman Discusses Her Genetic FTD Status in Fox News Interview
Alyssa Nash, a 27-year-old hospital receptionist, shared her experiences on the FTD journey and learning she carries a genetic FTD causing mutation in a May 19 article published by Fox…
Dr. Chiadi Onyike Named AFTD Medical Advisory Council Chair-Elect
During their annual meeting at the 2023 Education Conference, AFTD’s Board of Directors named Chiadi Onyike, MD, as Chair-Elect of the Medical Advisory Council (MAC). Dr. Onyike will serve as…
Guest Feature: “That Thin Thread Blooms into A Rainbow” – The FTD Journey from the LGBTQIA+ Perspective
The FTD journey is wrought with hardships, with families often facing a lengthy diagnostic process, steep costs for proper FTD care, and feelings of isolation. But some living with FTD…
Tips & Advice: Documenting Changing Behavior
Many behaviors caused by FTD, such as aggression, disinhibition, delusions, and apathy, are challenging and distressing for people diagnosed and care partners. Such behaviors often result from an unmet need,…
Advancing Hope: Accelerating Drug Discovery for FTD – New Awards From a Long-Standing Partnership
Before FTD researchers can initiate a clinical trial of a new medication, they must carry out preclinical testing to better understand its effects on the body, confirm that it binds…
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