What's New
1,200+ Join AFTD’s Annual Education Conference to Connect, Learn, and Engage
AFTD’s Annual Education Conference brought together more than 1,200 people on April 8 for an opportunity to connect, learn, and engage with others who truly understand the disease. Persons diagnosed…
First Annual Holloway Summit Focuses on Digital Assessment Tools for FTD
Leaders in FTD science, neurodegenerative disease research, and digital tool development gathered in Miami on May 18-20 for the first annual Holloway Summit, to discuss digital assessment tools and their…
Detroit Sportswriter Honors Late Cousin and Shares Family’s FTD History
Shawn Windsor, a sportswriter for the Detroit Free Press, recently paid tribute to his late cousin, who died of FTD in June at age 52 — one of many FTD-related…
Words of Encouragement: New Threads
New Threads by Kimberly Shaw This past February my father, who had been living independently in a small Catholic Charities apartment that provided meals, light housework, and laundry services, moved…
July’s Athlete of the Month: Jefferson Adams
Our AFTD-Team Athlete of the Month for July is Jefferson Adams from Missouri! Jefferson uses the Charity Miles app when he bikes and runs in honor of his mom Rebecca Ann,…
The Lived FTD Experience: Maintaining Joy in the Journey
Written by the Persons with FTD Advisory Council Now that you have been diagnosed with FTD, what brings joy to your life? FTD often removes our ability to continue doing…
July’s Volunteer of the Month: Janet Edmunson
For over 20 years, Janet Edmunson of Maine has been facilitating a support group for those affected by PSP, CBD and other atypical Parkinson’s diseases. Her passion for leading support…
Help & Support: Managing FTD with a Neuropalliative Care Approach
Neuropalliative care is an emerging field of medicine dedicated to improving the quality of care for people living with neurological disorders and their families. Palliative care was initially developed as a…
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