What's New
Advancing Hope: FTD and ALS Joint Initiatives
Did you know that certain cellular changes that occur in FTD are also observed in Amyotrophic Lateral Sclerosis (ALS)? In some cases, neurodegeneration in ALS and FTD is linked to…
The Lived Experience of FTD: Managing Anxiety
The following article was written by Chris Tann, a member of AFTD’s Persons With FTD Advisory Council. You can learn more about Chris and the other members of the Council…
Two Drugs Selected for Evaluation in Platform Trial for PSP
A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate the development of treatments for progressive supranuclear palsy (PSP). The trial is being…
Dear HelpLine: Hospice Care and FTD
Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How…
Study Evaluates PET Tracer and Explores How PSP Damages Brain Synapses
A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET tracer for progressive supranuclear palsy (PSP) while also exploring how the disorder damages…
Former Judge Gains Artistic Ability after PPA Diagnosis
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years…
Volunteer Update: Thank You to Our Volunteers!
To all those who dedicate their time and energy with AFTD to making a difference within the FTD community, we thank you! Every hour you invest and every task you…
Advancing Hope: AFTD Attends 2025 American Academy of Neurology (AAN) Meeting
Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees,…
AFTD Webinar: How to Find a Genetic Counselor
FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the…
PPA Telehealth Intervention Gets Positive Results in Phase 2 Clinical Trial
A phase 2 clinical trial evaluating a telehealth therapy intervention for primary progressive aphasia (PPA) published positive results, with participants showing improvement in PPA’s communication-related symptoms. The Communication Bridge 2…
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