What's New
Advancing Hope: AFTD Attends 2024 Target ALS Annual Meeting
AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific…
Help & Hope: The new FTD Disorders Registry Platform is Now Live!
The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as…
June 15, 2024: In-Person Meet & Greet in Newport News, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News (366 Deshazor Drive). RSVP by…
June 15, 2024: In-Person Meet & Greet in Richmond, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library (1200 N. 25th…
June 19, 2024: New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00…
Study Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can…
N.Y. State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced and sponsored a bill to the state Senate that, if approved, would create a statewide registry of FTD diagnoses. Sen. Hinchey announced the…
Hope Rising Benefit Honors Dr. Bruce Miller, Raises $1.9 Million for AFTD’s Mission
The eighth annual AFTD Hope Rising Benefit, held April 4 at New York City’s Ziegfeld Ballroom, raised more than $1.9 million to support AFTD’s mission of helping those affected by…
New York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry
ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s first statewide Frontotemporal Degeneration (FTD) Research Registry. The registry would help educate doctors…
Volunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can…
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