Daughter Writes Children’s Book in Honor of Father Who Had PSP
A newly published children’s book honors the author’s late father, who died from complications related to progressive supranuclear palsy (PSP), an article published on the website of the Today show…
Read MoreHelp & Support: Communicating with Persons Living with PPA – Tips and Strategies
Compiled by Stacey Moeller, MSc, AFTD-affiliated PPA Support Group Volunteer Primary progressive aphasia (PPA) is characterized by a gradual loss of one’s ability to speak, read, write, and understand speech.…
Read MoreSpotlight On…Mary Beth Wighton, Activist and Author
Finding a renewed sense of purpose amid an FTD journey can be challenging, but for Mary Beth Wighton, living in the moment is how she’s been able to find her…
Read MoreFTD Overview
Partners in FTD Care, Summer 2021 Download the full issue (pdf) Frontotemporal degeneration (FTD), which refers to a group of progressive neurological diseases affecting the brain’s frontal and temporal lobes,…
Read MoreMental Health Matters: Finding the Right Emotional Support
Partners in FTD Care, Summer 2021 Download the full issue (pdf) Some people with FTD are aware of their losses, and can express their feelings and their struggles to cope…
Read MoreReducing Financial Risk in FTD
Partners in FTD Care, Summer 2021 Download the full issue (pdf) FTD is uniquely able to wreak havoc on a family’s finances. Its symptoms may include impaired judgment, impulsive behaviors,…
Read MoreCreating Well-Being with Person-Centered FTD Care
Partners in FTD Care, Summer 2021 Download the full issue (pdf) By Mary O’Hara, LCSW José G., the subject of this issue’s case study, had a rich social and family…
Read MoreDisinhibition in FTD
Partners in FTD Care, Summer 2021 Download the full issue (pdf) by Esther Kane, MSN, RN-CDP, AFTD Director of Support and Education Disinhibition is a hallmark feature of behavioral variant…
Read MoreWhat to Do About… FTD, the Most Common Dementia Under 60
Partners in FTD Care, Summer 2021 Download the full issue (pdf) Frontotemporal degeneration is most commonly diagnosed between the ages of 45 and 64, and is the most common dementia under…
Read MoreProtein Replacement Therapy May Be Useful in Treating FTD-GRN, Recent Study Finds
Preclinical studies analyzing GRN mutations in FTD have uncovered a new approach to enhancing the brain’s intake of progranulin, a commonly mutated protein linked to genetic forms of FTD. As…
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