Advancing Hope: AFTD’s Director of Research Engagement Attends Cure VCP Conference
Shana Dodge, PhD, AFTD’s Director of Research Engagement, spoke at the 2023 Cure VCP Connections Conference, held July 20-22 in Las Vegas. VCP disease, also called VCP-associated multisystem proteinopathy or…
Read MoreGuest Feature: That Picture, That Movie, That Song – Connecting with My Dad Beyond FTD
FTD can distort one’s personality and behavior in unpredictable and upsetting ways, and it can be hard to remember who they were. But often, the “true” self of the person…
Read MoreAFTD Webinar: Genetic FTD — To Test or Not to Test
The decision to learn one’s own genetic risk for developing FTD is highly personal. An individual’s test results may reveal information not only about their own status, but may shed…
Read MoreAFTD and Denali Therapeutics Discuss Takeda Pharmaceuticals Partnership to Develop FTD-Focused Therapeutic
Recently, members of the Denali Therapeutics team provided insights into their work and partnership with Takeda to develop a therapeutic to treat FTD-GRN (Frontotemporal Dementia caused by GRN gene mutation)…
Read MoreStudy Evaluates the Feasibility of ALLFTD’s Mobile App to Collect FTD Diagnostic Data
A study published in the journal Alzheimer’s and Dementia evaluates whether a mobile app developed by the multi-site FTD research consortium ALLFTD can help users record and transmit scientifically acceptable…
Read MoreLiving Well with PPA
“Living Well with PPA” is a six-week online support program designed to provide a safe space so that people newly diagnosed with primary progressive aphasia can cope with their diagnosis…
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