The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

Learn More

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

September 25, 2025 | 12 p.m. ET

aftd helpline WEBINAR

The Lived Experience with FTD:

The Road to an FTD Diagnosis

13 Years of Food for Thought

Host an Event

Celebrate 13 years of turning meals into moments of awareness, connection, and hope.

Join us this September 21 – October 5

Read the Host Toolkit Donate Today

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

Helping from a Distance: Supporting Caregivers and People with FTD Who Are Self-Isolating

In situations where persons diagnosed with FTD and their primary care partners live together, the self-isolation necessitated by the COVID-19 pandemic has likely brought additional stress to an already challenging…

Communications Strategist Kristin Holloway Joins AFTD Board

AFTD announced today that Kristin Holloway has joined its Board of Directors, effective April 18. A communications professional with more than 10 years of experience as a strategist for high-growth…

Webinar: Ask the Expert – FTD and COVID-19

Following the COVID-19 related cancellation of AFTD’s 2020 Education Conference, we are presenting a month-long 2020 Education Conference Webinar Series. In this webinar, AFTD’s CEO Susan L-J Dickinson speaks…

Lowering the Risk of COVID-19 While Living with FTD

We are living in an unprecedented time. We are all at some risk from COVID-19, but medical conditions – particularly those that arise for those of us who are aging…

Researchers Identify Mechanism by Which Tau Spreads, Advancing Hope for Future Treatments

As research into the connection between the protein tau and neurodegenerative diseases such as FTD continues to increase, a recent study into the mechanisms by which the protein spreads could…

AFTD’s 2020 Education Conference: Webinar Series

The COVID-19 pandemic has prevented AFTD from holding our annual Education Conference in person this year. But in the weeks since its cancellation, AFTD staff have worked with conference presenters…

Family and friends happy moments in video conference in lockdown quarantine.

Check-in with AFTD…

AFTD is inviting the community we serve to check in and tell us how the COVID-19 pandemic is affecting you and your family’s situation. Share anything you’re moved to share…

Webinar: Self Care, Mindfulness and Remaining Positive

AFTD is presenting a series of webinars reflecting material originally developed for the 2020 AFTD Education Conference, which was canceled due to the COVID-19 pandemic. The material has been…

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