The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Volunteer Update: Giving Purpose to the Pain – Becoming an AFTD Ambassador and FTD Advocate

AFTD Ambassadors know the power of a single story and the healing potential of finding others who understand. Ambassadors are volunteer leaders who represent AFTD in communities across the U.S.,…

Dear HelpLine: Long-Distance Care Partners

Dear HelpLine, My dad was recently diagnosed with FTD. I’m devastated by the diagnosis, but I live in another state. How can I support him? How can I get support…

Graphic: WebMD Staff Write Shares His Experience as an ALLFTD Participant

WebMD Staff Writer Shares His Experience as an ALLFTD Participant

WebMD staff writer Damian McNamara, MA, shared his experiences as an ALLFTD participant in a post published on the website’s blog. “I always figured I would stay a safe distance…

AviadoBio Begins Clinical Trial to Evaluate AVB-101 for Treatment of FTD

Today, AviadoBio announced the start of its Phase 1/2 clinical trial to evaluate AVB-101 as a one-time treatment for candidates who have the progranulin (GRN) genetic variant. AFTD applauds AviadoBio’s…

Advancing Hope: FTD Disorders Registry Deploying Upgraded Platform Under New Director

The FTD Disorders Registry is a powerful tool in the effort to discover treatments and a cure for FTD, leveraging the stories of persons diagnosed with FTD, their caregivers (both…

Case Report Co-Authored by AFTD Board Member Highlights Varying Presentations of FTD-GRN

A case report recently published in the journal Clinical Parkinsonism & Related Disorders highlights how even between people with the same variant of genetic FTD caused by a GRN mutation…

AFTD Webinar: Answering Questions and Providing Support — A Q&A with AFTD HelpLine Staff

Understanding and managing FTD can be overwhelming for those living with a diagnosis, their care partners, and healthcare professionals. The AFTD HelpLine is here to provide support. Last year, HelpLine…

U.S. Rep. Jennifer Wexton Announces Progressive Supranuclear Palsy Diagnosis

Representative Jennifer Wexton of Virginia announced last week that she would not be seeking re-election after receiving a diagnosis of progressive supranuclear palsy (PSP). In April, Wexton announced that she…

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