The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Perspectives in FTD Research Webinar: Gene Therapy for FTD — What Do I Need to Know?

In the last several years, new clinical trials have begun for drugs that can potentially slow or stop the progression of FTD caused by specific genes. Gene therapy and gene…

News Report on Tallahassee Couple’s FTD Journey Highlights Challenges of Misdiagnosis

A report aired by Tallahassee news station WTXL27 shares how FTD has affected the lives of a local couple. Larry Davis told reporter Maya Sargent that his FTD diagnosis and…

Volunteer Update: AFTD Ambassadors Welcome New Cohort

The AFTD Ambassador program was launched in 2019 as a new opportunity for AFTD’s volunteer leadership. Since then, the initial cohort of Ambassadors has grown into an enthusiastic, highly motivated…

Graphic: Public benefits when notable names share neurological struggles, UCLA professor writes

Public Benefits When Notable Names Share Neurological Challenges, UCLA Professor Writes

In an opinion piece published last month in the Los Angeles Times, Keith Vossel, MD, of the University of California, Los Angeles, writes that celebrities and politicians who share their…

January 18 — Starting Fresh 2024: Empowering Caregivers Conference

AFTD is co-sponsoring Starting Fresh 2024: Empowering Caregivers, a caregivers conference held by the Alzheimer’s Association Capital of Texas Chapter at the Georgetown Public Library on January 18 from 9:00…

Advancing Hope: AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD

The second annual AFTD Holloway Summit, focused on biomarkers for FTD, was held from November 30 to December 1 in Miami Beach, FL. More than 50 attendees from academia, industry,…

Dear HelpLine: Dealing With Genetic Uncertainty

Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected my parent, my anxiety increases. Is it normal to worry that other family…

Graphic: AFTD and ADDF Extend Treat FTD Fund Through 2035

AFTD and ADDF Extend Treat FTD Fund Program Through 2035

AFTD and the Alzheimer’s Drug Discovery Foundation (ADDF) have committed to extending the Treat FTD Fund program through 2035, providing an additional ten years of support to accelerate treatment development…

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