Resources
You don’t have to face the FTD journey without help. AFTD has created and compiled resources that you can use for support, as well as to educate yourself and others about this disease.
Call 866-507-7222 or send an email to info@theaftd.org for answers to your FTD questions. Staffed by social workers, the Helpline can provide more information on subtypes of FTD, give guidance on managing a new diagnosis, and help connect you to resources and support.
AFTD developed checklists to help identify red flags for behavioral variant FTD (bvFTD), primary progressive aphasia (PPA), and FTD-ALS. You can indicate which symptoms you or your loved one is experiencing on the front side of the document. The back of the document is designed to help your physician better understand FTD diagnostic criteria.
Comstock Grants
AFTD’s Comstock Grant program offers modest financial assistance to people with FTD and care partners to maximize their quality of life. Grant programs are available for the person with FTD, full-time family care partners, and for travel to an AFTD Education Conference. Visit page
Awareness Cards
These printable cards let others know what FTD is and how it may impact behavior in a public setting. They are available in English and Spanish for both care partners and persons diagnosed. Visit page
Provider Letter
This sample letter lets care partners and persons diagnosed inform healthcare professionals about FTD’s symptoms as well as ways they can help. It can also be given to other professionals whom you may deal with, including lawyers, family members, and law enforcement. AFTD offers letters written from the perspective of both persons diagnosed and care partners/caregivers.
Publications
This page contains information about publications from AFTD, a short documentary about FTD, and other recommended resources. Visit page
Recommended Reading/Viewing
This page contains a list of media compiled through recommendations from AFTD staff and family caregivers. Visit page
State-by-State, International, and Other Resources
International resources and state resources are available.
For a list of links to other resources that may provide useful FTD-related information to persons diagnosed, caregivers, healthcare professionals, and researchers, view this page.
Frequently Asked Questions
View our list of Frequently Asked Questions.
COVID-19 and FTD
AFTD resources address the unique challenges COVID-19 may add to FTD care.
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