The following publications were produced by AFTD or with AFTD input:
The Doctor Thinks It’s FTD. Now What?
Walking with Grief: Loss and the FTD Journey
An important AFTD resource, Walking with Grief offers a deep and comprehensive guide to navigating the grief that FTD imposes. The booklet draws on personal stories from care partners and persons diagnosed to offer guidance, resources, and coping mechanisms to help all whose lives are touched by this disease.
Understanding the Genetics of FTD: A Guide for Patients and Their Families
A collaborative effort between AFTD and the University of Pennsylvania’s Center for Neurodegenerative Disease Research, this booklet contains information on the role genetics plays in FTD.
What About the Kids? Booklet
The AFTD Task Force on Families with Children produced this booklet, aimed at parents with young children and teens. What About the Kids? is a sensitive, practical guide for parents to help their children deal with a parent who has FTD.
It Is What It Is
This powerful 18-minute documentary follows four families whose lives have been touched by FTD. By telling their stories, these families reflect common experiences and become harbingers of hope. You can watch the film on YouTube, or order a DVD. (The DVD comes with an informational booklet, which is also available to download.)
Frontotemporal Disorders: Information for Patients, Families, and Caregivers
Produced by the National Institute on Aging, this free booklet discusses FTD’s causes, symptoms and care-management strategies in simple, easy-to-understand language. The booklet contains contributions from AFTD.