Publications

The following publications were produced by AFTD or with AFTD input:

The Doctor Thinks It’s FTD. Now What?

This AFTD publication helps individuals and families take a strategic approach to a new diagnosis of FTD and prepare for the changes it brings.
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Understanding the Genetics of FTD: A Guide for Patients and Their Families

A collaborative effort between AFTD and the University of Pennsylvania’s Center for Neurodegenerative Disease Research, this booklet contains information on the role genetics plays in FTD.
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What About the Kids? Booklet

The AFTD Task Force on Families with Children produced this booklet, aimed at parents with young children and teens. What About the Kids? is a sensitive, practical guide for parents to help their children deal with a parent who has FTD.
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It Is What It Is

This powerful 18-minute documentary follows four families whose lives have been touched by FTD. By telling their stories, these families reflect common experiences and become harbingers of hope. You can watch the film on YouTube, or order a DVD. (The DVD comes with an informational booklet, which is also available to download.)

Frontotemporal Disorders: Information for Patients, Families, and Caregivers

Produced by the National Institute on Aging, this free booklet discusses FTD’s causes, symptoms and care-management strategies in simple, easy-to-understand language. The booklet contains contributions from AFTD.
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