Links

The following links may provide useful information to persons diagnosed, care partners, healthcare professionals and researchers.

Organizations

Genetics

Support Organizations

  • Care.com’s Senior Care Directory– Lists senior-care resources by state in seven categories: housing resources, transportation resources, home care, end-of-life care, legal resources, financial planning and management, and health care. Please note: AFTD does not endorse or validate any information posted on this website
  • Lotsa Helping Hands: An online resource that connects caregivers, individuals, and families who need help with those who want to lend a helping hand.
  • Share the Care– A non-profit organization that provides information on how to organize a care group for someone who is seriously ill.
  • Well Spouse Association– A volunteer-based non-profit organization whose mission is to provide peer emotional support and information to the husbands, wives, and partners of the chronically ill and/or disabled. WSA is the only national organization which focuses exclusively on spousal caregivers.

Area Agencies on Aging

These agencies provide many helpful long-term care services to patients and families. You may apply for state and federal financial aid (through Medicaid) for home care and nursing home care through your local agency on aging. Visit the National Association of Area Agencies on Aging for more information.

Eldercare Locator

The Eldercare Locator is a public service of the U.S. Administration on Aging. This searchable website is a first step for finding agencies in your community that can help older persons and their families to access home and community-based services like transportation, meals, home care, and caregiver support services.