Chère ligne d'assistance : Soins palliatifs et DFT
Dear HelpLine, My sister has had FTD for a few years, and her doctor recently told us we should consider moving her to hospice. What does hospice care involve? How has the experience gone for others? Hospice offers holistic care that focuses on maximizing the quality of one’s remaining life by addressing physical symptoms and…
Lire la suiteUne étude évalue le traceur PET et explore comment la PSP endommage les synapses cérébrales
A study published in the journal Alzheimer’s & Dementia evaluates the potential utility of a novel PET tracer for progressive supranuclear palsy (PSP) while also exploring how the disorder damages synapses. The Mechanisms of Synaptic Loss in PSP are Unknown Synapses are the junctions that connect neurons, transmitting electrical or chemical signals to assist with…
Lire la suiteUn ancien juge acquiert des capacités artistiques après un diagnostic de PPA
A former judge in Folsom, Calif., has discovered a newfound talent for visual art following a diagnosis of primary progressive aphasia, KCRA in Sacramento reported earlier this year. Two years ago, Dylan Sullivan would never have called herself an artist. As a judge in El Dorado, Calif. Superior Court, her world was the law, her…
Lire la suiteMarathon de Colfax 2025
The AFTD-Team will participate in the Colfax Marathon on May 17-18, as an Official Charity Partner. We hope you’ll join us for a weekend of connection and awareness. Race distances include: Marathon (26.2 miles); Half Marathon (13.1 miles); Urban 10-Miler; 5K (3.1 miles); and Marathon Relay (26.2 miles across five individual legs). Click here to…
Lire la suiteBRI Care Consultation Learning Collaborative – Comprendre la DFT : diagnostic, soutien et ressources pour les patients et les soignants
Rejoignez Esther Kane, MSN, RN-CDP, directrice du soutien et de la formation de l'AFTD, pour une séance d'information gratuite, présentée par l'Institut Benjamin Rose sur le vieillissement, mettant en lumière les signes et symptômes de la DFT, son diagnostic et les ressources disponibles pour les familles confrontées à cette maladie. Une séance de questions-réponses sera organisée pour permettre aux participants…
Lire la suiteMise à jour des bénévoles : Merci à nos bénévoles !
To all those who dedicate their time and energy with AFTD to making a difference within the FTD community, we thank you! Every hour you invest and every task you undertake plays a vital role in bringing us closer to the day we have effective treatments, and finally a cure, for FTD. Thank you to…
Lire la suiteFaire progresser l'espoir : l'AFTD participe à la réunion 2025 de l'Académie américaine de neurologie (AAN)
Staff from AFTD and the FTD Disorders Registry attended the American Academy of Neurology’s Annual Meeting earlier this month in San Diego. This meeting typically attracts around 14,000 international attendees, including many clinical neurologists. While in San Diego, AFTD and Registry staff worked to spread awareness about FTD and iconnect with others who can help…
Lire la suiteTournoi de golf Driving Hope 2025 de l'AFTD (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on August 10th at the Colorado National Golf Club in Erie, CO! Tickets are available for single golfers, foursomes, and dinner/drinks only guests. There are also multiple sponsorship opportunities…
Lire la suiteTournoi de golf Driving Hope 2025 de l'AFTD (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2025 Driving Hope Golf Tournament on September 29th at the Metropolis Golf Club in White Plains, NY! Tickets are available for single golfers, foursomes, and reception only guests.…
Lire la suiteWebinaire AFTD : Comment trouver un conseiller en génétique
La DFT présente un risque génétique plus élevé que les autres démences. Bien que toutes les DFT ne soient pas héréditaires, il est crucial de comprendre si la DFT présente dans votre famille est d'origine génétique : cela peut confirmer le diagnostic, éclairer les choix de soins, vous aider à anticiper vos besoins futurs, à planifier vos finances et à permettre à vos proches de prendre des décisions éclairées concernant leur famille et leur avenir.
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