Chère ligne d'assistance : Subventions Comstock
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more? Living with FTD brings significant changes for both persons diagnosed and their care partners. As symptoms emerge — behavioral changes, language challenges, cognitive shifts —…
Lire la suiteFaire progresser l'espoir ; l'AFTD participe à la conférence mondiale Tau
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS), MAPT Frontotemporal Degeneration, Alzheimer’s Disease, and other neurodegenerative disorders. This conference was co-hosted by the Alzheimer’s Association, CurePSP, and the Rainwater Charitable Foundation. It brought…
Lire la suitePartagez votre histoire pour faire la différence : comment entrer en contact avec les législateurs et créer le changement
Cuts to federal programs are threatening the support systems that people living with FTD and their families rely on. Now more than ever, your voice matters. Join us for a powerful AFTD Advocacy Webinar where you’ll learn how to share your FTD journey with legislators in a way that drives real change. We’ll walk you…
Lire la suitePathologie cérébrale compatible avec la DFT trouvée dans environ 351 cas de maladie du motoneurone TP3T dans une étude récente
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes diseases like ALS. Abnormal protein clumps were detected in 90% of the samples studied, with participants classified as having both FTD and motor neuron disease…
Lire la suiteLa thérapie génique prometteuse d'AviadoBio pour la DFT est présentée dans le Guardian britannique.
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101, targets the specific genetic form FTD-GRN, caused by mutations that create a deficiency in progranulin, a protein essential for healthy brain cells. The treatment represents…
Lire la suiteDigest scientifique sur la DFT : contribuez à l'avancement de la science en rejoignant le registre actualisé des troubles de la DFT.
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
Lire la suitePleins feux sur la recherche sur la DFT : un nouveau portail pour les chercheurs et d'autres mises à jour du registre des troubles de la DFT
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than ever. Trials targeting sporadic FTD are also emerging, such as an ongoing trial on semantic variant primary progressive aphasia (svPPA) and an upcoming platform trial…
Lire la suiteWebinaire sur la dysfonction foetale (DFT) : L'orthophonie — une pratique prometteuse dans le traitement et les soins de la DFT
Lorsque les patients perdent la capacité de communiquer efficacement, les médecins et autres cliniciens les orientent souvent vers un orthophoniste pour les aider à retrouver leur capacité à parler. Mais chez les patients atteints d'aphasie progressive primaire (APP), un trouble du langage courant (DFT), la capacité à parler perdue ne revient pas et la communication ne fait que se dégrader à mesure que le cerveau…
Lire la suiteL'expérience vécue de la DFT : les défis du 4 juillet
The following article was written by former Persons with FTD Advisory Council member Cindy Odell. The Council works to ensure the voice of people living with FTD guides AFTD as it works towards a future free from FTD; you can learn more about the Council and current members on AFTD’s website. What an exciting time…
Lire la suite2e tournoi de golf annuel commémoratif Jim Tobin
L'ambassadrice de l'AFTD, Dawn O'Gara, organisera le 28 septembre 2025 le deuxième tournoi de golf annuel commémoratif Jim Tobin. Tous les bénéfices seront reversés à l'AFTD pour la recherche. Le tournoi se déroulera au Raceway Golf Club de Thompson, dans le Connecticut. Le prix est de 1 TP4T500 par quatuor, ou 1 TP4T40 pour le buffet du soir uniquement. L'inscription comprend 18 trous de golf, le green…
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