What's New
Study Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can…
N.Y. State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced and sponsored a bill to the state Senate that, if approved, would create a statewide registry of FTD diagnoses. Sen. Hinchey announced the…
Hope Rising Benefit Honors Dr. Bruce Miller, Raises $1.9 Million for AFTD’s Mission
The eighth annual AFTD Hope Rising Benefit, held April 4 at New York City’s Ziegfeld Ballroom, raised more than $1.9 million to support AFTD’s mission of helping those affected by…
New York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry
ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s first statewide Frontotemporal Degeneration (FTD) Research Registry. The registry would help educate doctors…
Volunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can…
AFTD announces 2023 Pathways for Hope Pilot Grant recipients
AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD research, laying the groundwork for additional follow-on support from a larger funder. Pathways…
Tips & Advice: Dealing With the Loss of Empathy
One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons diagnosed to become uncharacteristically indifferent towards other people, including loved ones. This loss…
May 15, 2024: TEDx Miami’s “Stories of Resilience,” featuring Dr. Leila Allen
Dr. Leila Allen, a neuroscientist and the founding director of the behavioral neuroscience undergraduate program at Florida International University, will be speaking at a TEDx Miami event called “Stories of…
U.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia
Researchers in the United Kingdom are preparing to conduct a nationwide trial evaluating blood tests for biomarkers of dementias like FTD and Alzheimer’s disease, according to a recent article by…
New York Sen. Michelle Hinchey, Emma Heming Willis Join Families of People With Frontotemporal Degeneration To Call For Increased Awareness And Research Into Underdiagnosed Disease
The conference also featured an art exhibit with works by people with frontotemporal degeneration (FTD); the disease can spark creativity in some people Houston, Texas — New York State Sen.…
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