What's New

AFTD to Host Patient-Focused Drug Development Meeting with FDA

In March, people and families affected by FTD will have the opportunity to speak directly to representatives from the U.S. Food and Drug Administration (FDA), providing input based on their…

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Wash. Post Reports on FTD and Other Atypical Dementias

People in their 50s and 60s are increasingly being diagnosed with non-Alzheimer’s forms of dementia, including frontotemporal degeneration, the Washington Post reported in an article published December 6. “No one…

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Watch the 2020 World FTD Marathon…

The first-ever World FTD Marathon, a day-long series of interactive webinars from around the globe, is now available to view in its entirety online — approximately 17 hours of FTD-focused…

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November’s Athlete of the Month: Steve Smith

This November, we would like to name Steve Smith from Minnesota athlete of the month for supporting AFTD’s mission through Charity Miles! Steve has completed over 570 miles by checking…

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November’s Volunteer of the Month: Al Papesh

November’s volunteer of the month is Al Papesh. In the Fall of 2015, Al attended an AFTD Meet & Greet in Des Moines, Iowa. Prior to that meeting, Al thought…

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Words of Encouragement: Finding & Fostering Joy with FTD

by Whitney Ludvik In June 2016, three years after moving away from my hometown of Richmond, Virginia, I got a call from one of my mom’s best friends. She had…

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Watch the 2020 World FTD Marathon…

On October 3, World FTD United, an international coalition of FTD-focused organizations, delivered 17 consecutive hours of FTD awareness and information with the first-ever World FTD Marathon — all of…

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Webinar: Living the Grief of FTD – The Winding Paths of Loss, Love, and Resilience

In FTD, losses begin with the first presenting symptoms. Even before a diagnosis, persons diagnosed and their families experience tremendous fear and worry — which, over time, develop into feelings…

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Building a Future Free of FTD: AFTD’s 2020 Annual Report

AFTD’s 2020 Annual Report documents progress made in the fiscal year commencing July 1, 2019 and ending June 30, 2020. Through donor support, AFTD advanced the key areas of our…

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