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Words of Encouragement: Remembering Our Joy
by Tom Christian I finally got around to taking the Christmas decorations down yesterday. Over the last few years, my decorating efforts have been minimal at best. My wife, Grace,…
Advancing Hope: 2020 AFTD Pilot Grant Recipients Announced
AFTD Pilot Grants – our longest-running funding program – provide critical support to early-career investigators and encourage them to become lasting contributors to FTD research. Despite the challenges imposed by…
January’s Athlete of the Month: Pam McReynolds
January’s athlete of the month is AFTD-Team member Pam McReynolds from Tennessee. Pam joined us on Charity Miles last July, and has since logged over 1,000 miles by walking in…
N.Y. Couple Discuss Anticipatory Grief in FTD
Karin and Rudy Fuehrer, a married couple of 38 years, shared their story of managing the “anticipatory grief” associated with FTD in a December 24 article and radio segment on…
RSVP to Help Inform Future FTD Treatments
On March 5, 2021 AFTD will host a virtual Externally Led Patient-Focused Drug Development (EL-PFDD) meeting with representatives of the U.S. Food and Drug Administration. The FDA uses these meetings…
Study Shows Apathy May Be Early Indicator of FTD
A recent study shows that apathy can be an early indicator of FTD, presenting itself long before other FTD symptoms emerge, Science Alert reported in a December 17 article. Apathy,…
Persons with FTD Discuss “Lost” Pandemic Year
While the COVID-19 pandemic has forced everyone to postpone or cancel our most ambitious plans for 2020, persons diagnosed with FTD and other terminal diseases felt a more acute sense…
December’s Volunteer of the Month: Kathy LaFone
December’s volunteer of the month is Kathy LaFone. Kathy, from North Carolina, volunteers out of a “crazy little thing called love” for her late husband, Tim, who had FTD. “I…
Words of Encouragement: Holding onto Memories of Mom
by Amy Shillady The COVID-19 pandemic has inflicted tremendous loss. Some people have missed out on long-anticipated vacations or wedding ceremonies, and some have even lost jobs or homes. Thousands upon…
December’s Athlete of the Month: Amy Pohl
December’s athlete of the month is Amy Pohl. Amy is dedicated to using the Charity Miles app, and has walked, run, and biked over 520 miles, accompanied by her husband,…
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