What's New
AFTD-Team: Freedom Run in Cambridge, MA
AFTD staff is lacing up their sneakers and forming a team for the Freedom Run in the Cambridge, MA area on June 5th. Visit our campaign page for registration information, instructions…
AFTD-Team: King of Prussia 10 Miler 5K Walk/Run greater Philadelphia, PA
Join the staff of AFTD on May 22nd as we participate in the 5K at the King of Prussia 10 Miler! AFTD is participating in this race for the fifth year, bringing…
AFTD-Team: Shamrock Shuffle in Oakville/Watertown, CT
AFTD is participating in the Shamrock Shuffle 5K in Oakville/Watertown, CT on March 12th to bring greater FTD awareness to the surrounding Connecticut area, while also raising funds to help people affected by…
Penn FTD Center’s 2016 FTD Caregiver Conference
Friday, May 20, 2016, from 8 a.m.–4:30 p.m. University of Pennsylvania Smilow Center for Translational Research 3400 Civic Center Boulevard Philadelphia, PA 19104 The Penn Frontotemporal Degeneration Center invites you to…
Supportive Care Study, Currently Enrolling
AFTD is pleased to share that the Memory and Aging Center of the University of California, San Francisco is launching a Supportive Care Study that also features a telephone and…
“DEMENTIA COSTS SOARING; GOVT UNFAZED” – an article from the Bangalore Mirror Bureau
Experts say the burden of the cost of dementia has been seriously underestimated; studies pointed out the need for doctors, researchers and policymakers to catalyse geriatric health services in India.…
An Optimistic View of Life with FTD from a Person Diagnosed
Jan Ford, a person diagnosed with FTD, shares her journey to diagnoses, and life afterward in this honest and encouraging article titled, “FTD is Not the End of the World“.
Washington Times Article: Mystery brain disorder robs patients of their words
In an article from The Washington Times, primary progressive aphasia (PPA) is discussed and how it varies from Alzheimer’s Disease in that it doesn’t rob people of their memories, but…
Who I Love
Created with assistance from students at Boston University, this video profiles the stories of people impacted by FTD, and shares the response of people learning about the disease for…
Help & Hope #25
Issue #25: February 2016 (originally published as The Gateway)