What's New
Leading FTD Expert Dr. Bruce Miller Interviewed on “Big Brains” Podcast
Bruce Miller, MD, was a recent guest of the University of Chicago podcast “Big Brains,” sharing his experiences observing people with FTD. He discussed the need for a new way…
AFTD Joins Lawmakers to Advance Dementia Awareness in California
SACRAMENTO, CA – The Association for Frontotemporal Degeneration (AFTD) and FTD advocates – including Emma Heming Willis, wife of actor Bruce Willis – will travel to the California State Capitol…
Dementia Action Alliance Publishes Updated Guide to Living with Dementia
The organization Dementia Action Alliance (DAA) has released an updated version of “Pathways to Well-Being with Dementia,” a manual of practical tools, strategies, and insights to support well-being with dementia.…
Advancing Hope: Early-Career Awardees of AFTD Research Grants are Making Strides!
Did you know that AFTD currently has six active research grant programs funding FTD research at all stages, from discovery research to clinical trials? Three of these programs are focused…
AFTD Webinar: From Symptom Onset to Diagnosis — Improving the FTD Diagnostic Journey
FTD’s complex symptomology means it is often misdiagnosed. This webinar explores what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early…
AFTD Grantee Study Assesses Protein Changes Which Could Help Track FTD Severity
A study published in Nature Aging looked at a large number of proteins in cerebrospinal fluid (CSF) to see if combinations of changes in these proteins could be used for…
Late FTD Advocate Susan Suchan Spotlighted in New Documentary
Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan,…
Advancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients
Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects…
Dear HelpLine: Resources for Genetic FTD
Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be…
AviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy,…
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain) 
English