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Guest Feature: Learning to live with familial FTD
The following Guest Feature was written by Brooke Teweles, who lost her mother and aunt this year to a form of FTD-ALS with genetic roots. Brooke is a proud advocate…
AFTD Advocates Visit California Capitol for Passage of FTD Awareness Week Resolution
AFTD staff and advocates, including Emma Heming Willis, traveled to Sacramento on August 18 to celebrate California’s official recognition of FTD Awareness Week 2025. This is California’s second consecutive year…
Emma Heming Willis Interviewed by Diane Sawyer in Prime-Time Special
Emma Heming Willis was interviewed Tuesday night, August 26, on “Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special,” sharing her family’s experience of living with FTD.…
Book About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission
“No Fault of His Own,” a novel released this summer, was the focus of a recent AFTD fundraiser organized by its author Gina Biskupic, a speech and language pathologist and…
The Lived Experience of FTD: Talk Therapy in FTD – Risks and Benefits
The following article was written by Anne Fargusson, RN, a member of AFTD Persons with FTD Advisory Council. You can learn more about Anne and her colleagues by visiting the…
Ferrer PSP Drug Receives Fast Track Designation from U.S. FDA
Spanish pharmaceutical company Ferrer announced that its experimental drug for progressive supranuclear palsy (PSP) has received a Fast Track designation from the United States Food and Drug Administration (FDA). …
Leading FTD Expert Dr. Bruce Miller Interviewed on “Big Brains” Podcast
Bruce Miller, MD, was a recent guest of the University of Chicago podcast “Big Brains,” sharing his experiences observing people with FTD. He discussed the need for a new way…
AFTD Joins Lawmakers to Advance Dementia Awareness in California
Above, L-R: Emma Heming Willis, AFTD Ambassador Terry Walter, Calif. State Senator Roger Niello, and AFTD volunteers Jeanine Walter Misirli, MD, and Kristine Golden, PA-C SACRAMENTO, CA – The…
Dementia Action Alliance Publishes Updated Guide to Living with Dementia
The organization Dementia Action Alliance (DAA) has released an updated version of “Pathways to Well-Being with Dementia,” a manual of practical tools, strategies, and insights to support well-being with dementia.…
Advancing Hope: Early-Career Awardees of AFTD Research Grants are Making Strides!
Did you know that AFTD currently has six active research grant programs funding FTD research at all stages, from discovery research to clinical trials? Three of these programs are focused…
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