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New York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry
ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s…
Volunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family…
AFTD announces 2023 Pathways for Hope Pilot Grant recipients
AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD…
Tips & Advice: Dealing With the Loss of Empathy
One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons…
U.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia
Researchers in the United Kingdom are preparing to conduct a nationwide trial evaluating blood tests for biomarkers…
Dear HelpLine: Brain Donation
Dear HelpLine, How do we learn more and start the process of arranging a brain donation for…
Case Report Discusses Symptoms and Diagnosis of Progressive Supranuclear Palsy
A case report published earlier this year in the journal Radiology Case Reports discusses the symptoms and…
Perspectives in FTD Research Webinar: Navigating Social and Legal Challenges in Familial FTD
Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch join this…
Advancing Hope: AFTD and Registry Staff attend Neurology Meeting
AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April…
The Lived Experience of FTD: Frustrations of FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
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