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Text: Advocacy Update: FTD Awareness Week Background: a map of the continental US with red pins spread across many states

Advocacy Update: FTD Awareness Week

With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or…

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Picture of Nicole Petrie and the title AFTD Brand Influencer Discusses Commitment to Caring

AFTD Brand Influencer Discusses Commitment to Caring

AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast…

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Text: Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy Background: Two scientists looking over results on a PC screen

Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy

A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset…

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Image: AFTD Ambassador Debbie Elkins shares her story on podcast.

AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast

AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the…

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New AFTD Find Support Map

Interactive Map Simplifies Search for Help on New AFTD “Find Support” Page

AFTD has just launched a new page designed to simplify your search for answers. We added an…

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AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV

In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed…

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AFTD Volunteers showing off their proclamations!

AFTD Volunteers Achieve FTD Awareness Week in 5 More States

In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness…

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Text: Dear HelpLine - Transitioning to Facility Care. Background: A group of people discuss care options.

Dear HelpLine: Transitioning to Facility Care

Dear HelpLine, We have just made the difficult decision to move my mom into facility care not…

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AFTD, Penn FTD Center, CLRI logos. Text: Welcome FTD CRLI Research Ambassador Program, June 2024.

Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop

On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the…

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AFTD Webinar: Advocate for Awareness — Working with Lawmakers to Highlight FTD

FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and…

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