
degeneration of the frontal
and/or temporal lobes of the brain.




this journey alone.
and support for families facing FTD.


















News & Events
“60 Minutes” FTD Segment to Re-Air on Feb. 2
60 Minutes will again broadcast its segment on FTD, “The Cruelest Disease You’ve Never Heard Of,” on Sunday, February 2. The segment originally aired last May, bringing FTD awareness to…
MORENew Research Shows Light Therapy Can Improve Dementia-Related Symptoms
New research suggests that light therapy may help to improve sleeping patterns, mood, and behavior in persons with dementia. Published in the Journal of Clinical Sleep Medicine in December, the…
MOREWriter Shares FTD Experience in New York Times Parenting Column
In a NYT Parenting column, writer Lizzie Skurnick draws parallels between watching her 6-year-old son grow older while, at the same time, her 75-year-old mother loses her cognitive abilities to…
MORERetired Police Officer Grants Christmas Wish for Family with FTD
A Pennsylvania family received “the best gift” this Christmas when a retired police officer helped bring their mother, who is living with FTD, home for the holidays. Lissa Hannan’s one…
MOREMonty Python Star Terry Jones Dies
Terry Jones, a founding member of the Monty Python comedy troupe, has died at the age of 77. He had primary progressive aphasia, a rare type of dementia that primary…
MOREKaiser Health News Highlights Issues Surrounding Advance Directives for Dementia
A Kaiser Health News article that centers on a woman with FTD sheds light on the emerging issues surrounding advance care directives for people living with dementia. Susan Saran decided…
MOREFormer Boston Herald Cartoonist and Family Discuss FTD Diagnosis
Former Boston Herald cartoonist Jerry Holbert and his wife Cheryl had many plans for retirement, but following Jerry’s FTD diagnosis last year, their lives have taken a different turn. Jerry,…
MOREFTD Caregiver Honored on Float in Annual Rose Parade
An FTD caregiver was among those honored on a float celebrating family caregivers during the 2020 Rose Parade on New Year’s Day. Aisha Adkins, whose mother Rose is living with…
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