The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

Learn More

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

September 25, 2025 | 12 p.m. ET

aftd helpline WEBINAR

The Lived Experience with FTD:

The Road to an FTD Diagnosis

13 Years of Food for Thought

Host an Event

Celebrate 13 years of turning meals into moments of awareness, connection, and hope.

Join us this September 21 – October 5

Read the Host Toolkit Donate Today

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

Los Angeles Marathon: March 19, 2023

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Los Angeles area and raise funds to help people affected by…

February’s Athlete of the Month: Dan Lyne

AFTD’s Charity Miles Athlete of the Month for February is Dan Lyne from Washington! Dan uses the app in memory of his younger twin sisters, Cathy and Jeannette, who both…

genetic information understanding my rights image

Help & Support: Genetic Information – Understanding My Rights

Obtaining genetic information showing if you or your family could have a genetic form of FTD can help in confirming a diagnosis, beginning financial and/or reproductive planning, and knowing if…

Remembering Dr. Geri Hall, Long-Time Friend of AFTD

Geraldine “Geri” Hall, PhD, a longtime associate of AFTD and a well-established voice in the field of neurodegenerative disease care, died on November 10 at 76. For years, Dr. Hall…

Study Evaluates Use of Serum Blood Samples as FTD Diagnostic Tool

In a recent study, researchers evaluated whether measuring TDP-43 in serum samples (blood samples from which certain components, like clotting agents or cells, have been removed) can be used to…

how dementia turned life upside down corticobasal degeneration image

Writer Shares How Dementia Turned Her Life Upside Down in HuffPost Article

Writer Jan M. Flynn shared how the dementias affecting her two sisters – including corticobasal degeneration (CBD) — has turned her and her family’s life upside down in an article…

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FTD Advocates Nominated for Singaporean of the Year Award

A pair of self-advocates diagnosed with dementia have been nominated by The Straits Times for the periodical’s Singaporean of the Year award. Alison Lim, who founded the organization Dementia &…

Help & Support: Finding Home and Community-Based FTD Care Options

Although many families are interested in finding in-home or community-based FTD care options, the process of obtaining appropriate services for their loved one can be daunting. AFTD’s HelpLine (866.507.7222; info@theaftd.org)…

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