Dear HelpLine: Resources for Genetic FTD
Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be at risk, I don’t know where to begin. When a loved one is diagnosed with FTD, relatives often wonder if they face the same risk.…
Read MoreAdvancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients
Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects during their early career stages. Please join us in congratulating the most recent awardees! 2025 AFTD Holloway Postdoctoral Fellowships Funding:$120,000 over two years Funded solely…
Read MoreAviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy, and the motivations for their work in an interview with Cell & Gene. Collaboration Helps Overcome Challenges with Gene Therapy Development While acknowledging that gene…
Read MoreAFTD Founder Helen-Ann Comstock, 1933-2025
Helen-Ann Comstock, who founded AFTD in 2002 to ensure that no other family would have to endure FTD without adequate resources, information, and support, died on July 30. She was 92. Following her husband’s FTD journey – a painful, confusing, lonely ordeal – Ms. Comstock took the lessons she learned and used them to create…
Read MoreThe Road to Timely and Accurate FTD Diagnosis
Accurate, early FTD diagnosis is crucial – for appropriate care, improved quality of life and disease management, adequate support for caregivers, better informed decisions around family planning, and access to clinical trial participation. But because FTD comprises a group of disorders, many of whose symptoms overlap with other neuropsychiatric and neurodegenerative conditions, FTD can be…
Read MoreAugust 23, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard Drive), starting at 9:15 a.m. To RSVP, email Scott at soxarart@theaftd.org. Download this flyer to learn more.
Read More
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)