2025 BMW Dallas Marathon
Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Dallas area and raise funds to help people affected by FTD. The AFTD-Team will participate in the 2025 BMW Dallas Marathon on December 13th – 14th. We hope you’ll join us for a weekend of connection and awareness.…
Read More2025 Philadelphia Marathon
Join the AFTD-Team as we bring greater FTD awareness to the surrounding Philadelphia area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Philadelphia Marathon on November 22nd and 23rd 2025, as an Official Charity Partner. We hope you’ll join us for a weekend of connection and awareness. Race distances include:…
Read More2025 TCS NYC Marathon
The AFTD-Team is a recurring Official Charity Partner at the TCS NYC Marathon. If AFTD is invited to return to the 2025 race, we will announce it and start letting those interested on our waitlist know. Runners who are selected for our guaranteed entries will need to fundraise a minimum of $5,000 for this race. To…
Read More15th International Conference on Frontotemporal Dementias in Philadelphia, PA
The 15th International Conference on Frontotemporal Dementias is coming to Philadelphia, Pennsylvania, in October, 2026. To learn more about this conference, please visit the ISFTD website.
Read MoreAviadoBio Announces Completion of Second Cohort in ASPIRE-FTD Trial at AFTD Education Conference
Gene therapy company AviadoBio announced the completion of the second cohort of its phase 1/2 clinical trial of a potential genetic FTD treatment at the 2025 AFTD Annual Education Conference in May. The trial is currently recruiting participants in the U.S. and Europe for a third cohort. Earlier Studies Show AVB-101 Is Well Tolerated in…
Read MoreCelebrating 20 Years of AFTD’s Pilot Grant Program
Over the past 20 years, AFTD’s Pilot Grant program, which supports early-career researchers or new ideas, has funded $2.8 million in innovative FTD research. In 2005, AFTD founder Helen-Ann Comstock and a small group of medical advisors awarded $35,000 to Eileen Bigio, MD, a clinical researcher at Northwestern University, to identify abnormal proteins present in…
Read MoreCelebrating 20 Years of AFTD’s Pilot Grant Program
Over the past 20 years, AFTD’s Pilot Grant program, which supports early-career researchers or new ideas, has funded $2.8 million in innovative FTD research. In 2005, AFTD founder Helen-Ann Comstock and a small group of medical advisors awarded $35,000 to Eileen Bigio, MD, a clinical researcher at Northwestern University, to identify abnormal proteins present in…
Read MoreAdvancing Hope: FTD and ALS Joint Initiatives
Did you know that certain cellular changes that occur in FTD are also observed in Amyotrophic Lateral Sclerosis (ALS)? In some cases, neurodegeneration in ALS and FTD is linked to aggregation and impairment of a protein known as TDP-43. Furthermore, there are genetic mutations linked to onset of one or both diseases. With these and…
Read MoreThe Lived Experience of FTD: Managing Anxiety
The following article was written by Chris Tann, a member of AFTD’s Persons With FTD Advisory Council. You can learn more about Chris and the other members of the Council on AFTD’s website. Anxiety is something that people living with FTD may experience on their journey. I have not been in the company of anyone,…
Read MoreTwo Drugs Selected for Evaluation in Platform Trial for PSP
A pair of drugs has been selected for evaluation in a platform trial that aims to accelerate the development of treatments for progressive supranuclear palsy (PSP). The trial is being conducted by researchers at the University of California, San Francisco; the University of California, San Diego; and Massachusetts General Hospital. Drugs for Other Tauopathies Might…
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