Hope Rising Benefit Raises Over $1.9 Million for AFTD’s Mission
Top row, L-R: Hope Rising MC Paula Zahn, Hope Rising Benefit Co-Chairs Joan Berlin and Anna Wintour, AFTD Ambassador Spencer Cline, Ariana DeBose, New York State Senator Michelle Hinchey
Read MoreIn-Person Meet & Greet in Scottsdale, Arizona
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Scottsdale, AZ, hosted by AFTD volunteer Lora Johnson, on May 10, 2025. You don’t have to face FTD alone. These events will offer an opportunity to spend time getting to know one another, learn about AFTD…
Read MoreIn-Person Meet & Greet in Scottsdale, Arizona
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Scottsdale, AZ, hosted by AFTD volunteer Lora Johnson, on May 10, 2025. You don’t have to face FTD alone. These events will offer an opportunity to spend time getting to know one another, learn about AFTD…
Read MoreDear HelpLine: Advance Care Planning
Dear HelpLine, My spouse was recently diagnosed with FTD and we want to make sure we are prepared for the future. Our doctor said to consider advance care planning, but we don’t know how to begin that process, or even what it would entail. We are feeling overwhelmed. Can you help? Advance care planning is…
Read MoreAdvancing Hope: AFTD Announces 2025 FTD Research Roundtable Leadership Committee
AFTD has launched its 3rd year of the FTD Research Roundtable. This program offers a forum for drug developers, regulators, academic leaders, and advocates to discuss shared challenges and potential solutions to accelerate the development of effective treatments for FTD. Jonathan Rohrer, MD, PhD from University College London (GENFI) and Arthur Simen, MD, PhD from…
Read MoreN.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry
A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in January by New York state Sen. Michelle Hinchey. Sen. Hinchey and AFTD’s Director of Advocacy and Volunteer Engagement, Meghan Buzby, were interviewed March 23 on the CBS affiliate in Albany discussing the proposed registry. “The bill is important…
Read MoreAFTD Webinar: How to Find a Genetic Counselor
FTD has a stronger genetic risk than other dementias. While not all FTD is inherited, understanding whether the FTD in your family is genetic is crucial: it can confirm the diagnosis, inform care choices, and help you anticipate future care needs, plan financially, and allow relatives to make informed decisions around family and future planning.…
Read MoreRegional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. This Meet & Greet will provide an opportunity to talk with others who…
Read MoreRegional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. RSVP by emailing Julie at m13family at gmail.com. We encourage you to download this flyer and…
Read MoreReview Article Explores Lived Experiences of Ceasing Driving Due to Young-Onset Dementia
A review article published in the journal BMC Geriatrics explores and summarizes the lived experiences of ceasing driving due to young-onset dementias like FTD, finding that families are often left to navigate the associated challenges on their own. Driving Often Cessation Occurs During Peak of Family Life and Career Dementias like FTD are progressive conditions…
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