Dementia Advocate with FTD Shares Her Perspective on Losing Her Driver’s License
In a blog article published by the Older Persons Advocacy Network of Australia, dementia advocate Gwenda Darling shares her perspective on losing her driver’s license due to her FTD diagnosis. Driving is a cognitively demanding task that is directly impacted by the symptoms of FTD. While it is possible for some persons diagnosed to drive…
Read More8th Annual Crusade for a Cure Golf Tournament
AFTD Ambassador Deb Scharper will host the 8th Annual Crusade for a Cure Golf Tournament on August 31, 2024, with proceeds benefiting AFTD’s Research Initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best shot format on 18 holes, four hole-in-one opportunities, plus mulligan and fairway…
Read MoreMay 11, 2024: In-Person Meet & Greet in Leicester, Mass.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Mass. on Saturday, May 11, starting at 10:30 a.m. ET. Email Dawn O’Gara at dogara@theaftd.org to RSVP. The event will take place from 10:30 – 11:30 a.m. at the Community Meeting Room in the Leicester…
Read MoreLeicester, Mass. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Mass. on Saturday, May 11, starting at 10:30 a.m. ET. Email dogara@theaftd.org to RSVP. Download this flyer to learn more — and be sure to share it with others who could benefit from this opportunity.
Read MoreAFTD Webinar: Making a Difference — Become an FTD Advocate
Many members of the AFTD community have found meaning and purpose by becoming an FTD advocate, working to make the journey easier for the next family. But how does one become an advocate? What are some best practices when it comes to delivering advocacy messages? And what types of legislation should we be supporting to…
Read MoreFTD Care Partner Shares Memories of Her Mother on TikTok
In an interview with Newsweek, FTD care partner Channing Clifford shares her favorite memories with her mother, Valerie, who was diagnosed with FTD last year. Roughly 10 years ago, Valerie was struck by a car while riding her bike and suffered a traumatic brain injury. In the years since, Clifford noted that Valerie was acting…
Read MoreThe Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on its mission for an FTD-free future. We remember that exciting day when we got our driver’s license. Driving a car by ourselves, we discovered our…
Read MoreLink Between TAF15 Protein and FTD Discovered in UK Study
In a study published in the scientific journal Nature, researchers in the United Kingdom discovered that a previously known protein may play a role in the development of an FTD subtype once thought to be associated with the FUS protein. The abnormal accumulation of the proteins TDP-43 and tau have been previously identified as playing…
Read MoreAFTD Launches Social Media Campaign to #EndDementiaStigma
AFTD has launched #EndDementiaStigma, a social media campaign to mark Brain Awareness Week. The campaign empowers people with FTD, along with their care partners, family members, and friends, to share stories of how they continue to find meaning and connection, and to educate those around them to end dementia stigma. The campaign is initially launching…
Read More“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
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