Posts by PJ Lepp
Linde Jacobs Shares Her Family’s FTD Journey with the New York Times
A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse and advocate carrying a genetic frontotemporal degeneration (FTD) variant. Her journey exemplifies the…
Read MoreAFTD Launches Social Media Campaign to #EndDementiaStigma
AFTD has launched #EndDementiaStigma, a social media campaign to mark Brain Awareness Week. The campaign empowers people with FTD, along with their care partners, family members, and friends, to share…
Read MoreOne-Night Performance of Acclaimed Play UnRavelled Examines Art, Science, and Dementia
AFTD staff and Board members attended a performance of the play UnRavelled at the San Francisco Conservatory of Music on July 21. AFTD sponsored the play to raise FTD awareness…
Read MoreJanuary’s Athlete of the Month: Nick Rethemeier
AFTD’s first Charity Miles Athlete of the Month for 2023 is Nick Rethemeier from Minnesota. He initially started running for AFTD because of a recommendation from one of his coworkers.…
Read MoreGuest Feature: Grace for Yourself
The FTD journey is an emotionally taxing experience, with feelings of guilt, anger, resentment, and frustration accompanying an acute sense of loss. Grappling with these feelings is difficult, and caregivers…
Read MoreDestigmatizing Dementia to Improve the Caregiver Journey
Nicole Petrie, an FTD care partner and AFTD volunteer, became a caregiver advocate on social media by accident. While filming a video for TikTok, Nicole’s mom Cheryl, who is living with…
Read MoreHelp & Support: Sharing an FTD Diagnosis with Family and Friends
After receiving an FTD diagnosis, persons diagnosed and their care partners may wonder how to share this news with friends and family, even as they are just beginning to understand…
Read MoreHoliday Hacks for FTD-Related Challenges
The holidays are upon us, with all the hustle and bustle. It can be a happy time for all. But it can come with challenges for those with FTD. AFTD’s…
Read MoreNicole Petrie’s Burger Bomb Recipe for Caregivers
AFTD’s official partnership with Nicole Petrie has produced another TikTok video with an easy-to-make vegan recipe that everyone will enjoy. Nicole (@nicolepetrie) is a social media influencer and a caregiver…
Read MoreAdvocacy Update: AFTD Offers Comments at NAPA Meeting
As part of AFTD’s advocacy efforts, Advocacy Manager Matt Sharp virtually attended the National Alzheimer’s Project Act (NAPA) Advisory Council quarterly meeting last Monday, October 24. NAPA was formed by…
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