The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Dear HelpLine: Dealing With Genetic Uncertainty

Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected my parent, my anxiety increases. Is it normal to worry that other family…

Graphic: AFTD and ADDF Extend Treat FTD Fund Through 2035

AFTD and ADDF Extend Treat FTD Fund Program Through 2035

AFTD and the Alzheimer’s Drug Discovery Foundation (ADDF) have committed to extending the Treat FTD Fund program through 2035, providing an additional ten years of support to accelerate treatment development…

The Lived Experience of FTD: Grief on the FTD Journey

The following article was written by members of AFTD’s Persons with FTD Advisory Council, who work to ensure that the insights and voices of people living with FTD help guide…

Passage Bio Announces Hopeful Initial Data from Phase 1/2 Clinical Trial

Passage Bio released promising preliminary results from its phase 1/2 clinical trial evaluating an experimental treatment for FTD cases caused by a GRN genetic mutation (FTD-GRN). The “upliFT-D” trial is…

Tips & Advice: Navigating Apathy in FTD

A hallmark symptom of FTD, apathy can be particularly hard to deal with for persons diagnosed, care partners, and family members. Apathy manifests as an apparent loss of interest in…

Advancing Hope: AFTD hosts FTD Social at the Society for Neuroscience Annual Meeting

The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional organization for brain researchers. SfN’s annual meeting provides a forum for scientists from…

Editor Shares How Basketball Helps Him Bond with Friend Who Has PPA

Retired managing editor Lonny Cain of The Times (Ottawa, Ill.) shared in a recent article how basketball helps him communicate and continue to bond with his lifelong friend Randy, who…

“We’re Just Regular People with an Illness,” Dementia Advocate with FTD Writes in Essay

In an essay published by Inside Ageing, Bobby Redman, a retired behavioral psychologist living with FTD, discusses the results of a survey by Dementia Australia. According to the survey, nearly…

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