Skip to content
aftd-logo
AFTD HelpLine
Sign-Up
Donate
Search
Close
Search
Close
  • WHAT IS FTD?
        • Disease Overview
          • Behavioral Variant FTD
          • Primary Progressive Aphasia (PPA)
          • FTD-ALS
          • Progressive Supranuclear Palsy
          • Corticobasal Syndrome
        • FTD & Genetics
        • Find a Medical Center
        • FAQs
        • Glossary of FTD Terms
  • FIND SUPPORT
        • AFTD HelpLine
        • Find Support Near You
        • Newly Diagnosed
        • Managing FTD
          • Coordinating Care
          • Support for People with FTD
          • Support for Kids and Teens
        • Planning for Legal, Financial, and Health Insurance Issues
        • Resources
  • RESEARCH
        • Ways to Participate
        • Studies Seeking Participants
        • FTD Disorders Registry
        • For Researchers
  • GET INVOLVED
        • Ways to Give
        • Host an Event
        • Volunteer With Us
        • Be an Advocate
        • Calendar of Events
  • HEALTH PROFESSIONALS
        • Diagnosing FTD
        • Treating FTD
        • Partners in FTD Care
        • Healthcare Webinars
  • ABOUT US
        • Mission, Vision & Values
        • AFTD is Hiring
        • Our History
        • Staff
        • Board of Directors
        • Medical Advisory Council
        • Persons With FTD Advisory Council
        • AFTD Ambassadors
        • Strategic Plan
        • Financial and Impact Reports
  • NEWSROOM
        • News
          • FTD in the News
          • Events
          • Press Releases
          • Videos
          • Webinars
        • Publications
          • AFTD Insights
          • Help & Hope
          • Partners in FTD Care
        • Media
          • Contact our Newsroom
Search
Close
AFTD HelpLine
Sign-Up
Donate
aftd-logo
  • WHAT IS FTD?
    • Disease Overview
      • Behavioral Variant FTD
      • Primary Progressive Aphasia (PPA)
      • FTD-ALS
      • Progressive Supranuclear Palsy
      • Corticobasal Syndrome
    • FTD & Genetics
    • Find a Medical Center
    • FAQs
    • Glossary of FTD Terms
  • FIND SUPPORT
    • AFTD HelpLine
    • Find Support Near You
    • Newly Diagnosed
    • Managing FTD
      • Coordinating Care
      • Support for People with FTD
      • Support for Kids and Teens
    • Planning for Legal, Financial, and Health Insurance Issues
    • Resources
  • RESEARCH
    • Ways to Participate
    • Studies Seeking Participants
    • FTD Disorders Registry
    • For Researchers
  • GET INVOLVED
    • Ways to Give
    • Host an Event
    • Volunteer With Us
    • Be an Advocate
    • Calendar of Events
  • HEALTH PROFESSIONALS
    • Diagnosing FTD
    • Treating FTD
    • Partners in FTD Care
    • Healthcare Webinars
  • ABOUT US
    • Mission, Vision & Values
    • AFTD is Hiring
    • Our History
    • Staff
    • Board of Directors
    • Medical Advisory Council
    • Persons With FTD Advisory Council
    • AFTD Ambassadors
    • Strategic Plan
    • Financial and Impact Reports
  • NEWSROOM
    • News
      • FTD in the News
      • Events
      • Press Releases
      • Videos
      • Webinars
    • Publications
      • AFTD Insights
      • Help & Hope
      • Partners in FTD Care
    • Media
      • Contact our Newsroom
  • Search

New Research Could Offer Clues into Rare Neuron Linked to bvFTD

By Julie Sullivan | June 25, 2020 | 0

New research into rare, spindle-shaped neurons found deep within the brain could have implications for future studies of FTD and other neurodegenerative diseases. In a study made possible by a…

Read More

FTD Caregiver and Advocate Shares What She Has Learned

By Julie Sullivan | June 24, 2020 | 0

In an interview that highlights the unique challenges faced by millennial caregivers, Aisha Adkins shares what she has learned in her journey of caring for her mother, who is living…

Read More

Champion Race Car Driver Sir Jackie Stewart Shares Wife’s FTD Journey

By Julie Sullivan | June 23, 2020 | 0

In an interview with the Daily Record, the three-time Formula One champion Sir Jackie Stewart speaks to his wife’s journey with FTD and shares the challenges they have faced due…

Read More

Additional Guidance for Communicating with a Loved One in a Facility During COVID-19

By Matt Ozga | June 22, 2020 | 0

The COVID-19 pandemic is creating additional challenges for people with FTD in residential care, and for their families at home. Recently, Dr. Carmela Tartaglia of the University of Toronto published…

Read More

Messages of Hope

By Lauren Gauthier | June 22, 2020 | 0
Read More

UK Woman Shares Road to Accepting FTD Diagnosis

By Julie Sullivan | June 19, 2020 | 0

After two years of searching for answers to explain why she didn’t feel ‘quite right,’ Tracey Lane was diagnosed with FTD in her early 50s, a time she had once…

Read More

National Geographic Highlights Impact of COVID-19 Isolation on FTD Care

By Julie Sullivan | June 19, 2020 | 0

In a photo series that captures the profound impact of isolation during the COVID-19 pandemic, a photojournalist documents how his mother, who has FTD and lives in a memory care…

Read More

“Zoey’s Extraordinary Playlist” Renewed for Second Season

By Julie Sullivan | June 19, 2020 | 0

The NBC musical “dramedy” Zoey’s Extraordinary Playlist has been renewed for a second season, as reported earlier this week. Starring Jane Levy, the show follows as a young woman named…

Read More

5th Annual CWM Memorial Golf Outing

By Bridget Graham | June 19, 2020 | 0

The 5th Annual CWM Memorial Golf Outing will be held on July 11, 2020 at the Yankee Springs Golf Course in Wayland, MI. The event will feature an 18 hole…

Read More

4th Annual Crusade for a Cure Golf Tournament

By Bridget Graham | June 19, 2020 | 0

AFTD Ambassador Deb Scharper will host the 4th Annual Crusade for a Cure Golf Tournament on September 5, 2020, with proceeds benefiting AFTD research initiatives. The tournament will be held…

Read More
« Newer Posts
Older Posts »

The Association for Frontotemporal Degeneration
2700 Horizon Drive, Suite 120
King of Prussia, PA 19406

Office: 866-507-7222

Media Inquiries

AFTD Privacy Policy and Disclaimer

Candid 2025-2
Four-Star Rating Badge - Full Color
Platinum 2023 1in height


AFTD STORE

Have Questions?

Contact AFTD's HelpLine at

1-866-507-7222

or email info@theaftd.org. 

AFTD's EIN is 41-2073220

© 2025 The Association for Frontotemporal Degeneration
All Rights Reserved

×
en_USEnglish
es_MXSpanish (Mexico) fr_FRFrench de_DEGerman sv_SESwedish pt_PTPortuguese it_ITItalian nl_NLDutch da_DKDanish pl_PLPolish es_ESSpanish (Spain) en_USEnglish
AFTD uses cookies to ensure that website visitors have the best experience. We value your privacy.
Continuing to use this site implies consent with our Privacy Policy.


AFTD never sells user data.
Cookie settingsACCEPT
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
CookieDurationDescription
cookielawinfo-checkbox-analytics11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional11 monthsThe cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy11 monthsThe cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
Save & Accept