What's New
In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief
When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart…
The Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD
In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their…
Dear HelpLine: Comstock Grants
Dear HelpLine, We recently joined an FTD support group, which has been so helpful. The support group volunteer told us about AFTD’s Comstock Grants. Can you help us learn more?…
Advancing Hope: AFTD Attends the Tau Global Conference
In late April, AFTD Research team members attended a premier conference focused exclusively on research into tau, a protein which is aggregated in Progressive Supranuclear Palsy (PSP), Corticobasal Syndrome (CBS),…
Brain Pathology Consistent with FTD Found in Roughly 35% of Motor Neuron Disease Cases in Recent Study
According to a recent study published in the research journal Brain, brain pathology consistent with FTD was detected in roughly 35% of the participants with motor neuron disease, which includes…
Promising FTD Gene Therapy from AviadoBio Featured in the UK Guardian
In London’s Docklands, British biotech company AviadoBio is developing a promising gene therapy to treat FTD. The Guardian wrote about the company’s progress on June 13. AviadoBio’s lead therapy, AVB-101,…
FTD Science Digest: Help Advance Science by Joining the Updated FTD Disorders Registry
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than…
FTD Research Spotlight: A New Researcher Portal and Other Updates from the FTD Disorders Registry
It is a pivotal time for FTD clinical research. New therapies have advanced to phase 3 clinical trials. Treatments for FTD caused by variants in specific genes are closer than…
AFTD Webinar: Speech Language Therapy — A Promising Practice in FTD Treatment and Care
When patients lose the ability to communicate effectively, doctors and other clinicians often refer them to a speech language pathologist (SLP) to help them regain their speaking skills. But for…
The Lived Experience of FTD: The Challenges of July Fourth
The following article was written by former Persons with FTD Advisory Council member Cindy Odell. The Council works to ensure the voice of people living with FTD guides AFTD as…
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