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The Lived Experience of FTD: The Challenges of July Fourth
The following article was written by former Persons with FTD Advisory Council member Cindy Odell. The Council works to ensure the voice of people living with FTD guides AFTD as…
Chinese Study Explores the Psychological Well-being and Health of Dementia Caregivers
A study published in the journal BMC Geriatrics explores the self-assessed well-being of informal care partners and professional caregivers who support people with dementia, such as FTD. The study provides…
“Alzheimer’s & Dementia” Publishes Summary of AFTD’s 2022 Holloway Summit
Digital health technologies have the potential to benefit the FTD community by improving accessibility to research and clinical care. Such technologies were the focus of the 2022 Holloway Summit —…
Leonard A. Lauder, 1933-2025
Leonard A. Lauder, a legend of the cosmetics industry who invested hundreds of millions of dollars into research seeking a cure for FTD and other dementias through his Alzheimer’s Drug…
Vesper Bio Clinical Trial for FTD-GRN Treatment Achieves Enrollment Milestone
Danish biotechnology company Vesper Bio announced that it reached a participation milestone in its phase Ib/IIa clinical trial evaluating a treatment for FTD-GRN. Six participants have been enrolled in the…
Advancing Hope: Blood Test for Diagnosing Alzheimer’s Disease Approved by FDA
The United States Food and Drug Administration (FDA) approved the marketing of a blood test to diagnose Alzheimer’s disease. The test, known as the Lumipulse® G pTau 217/β-Amyloid 1-42 Plasma…
British Study Evaluates Ability of Novel Protein Assay to Capture Blood-Based Dementia Biomarkers
A study published in the journal Alzheimer’s & Dementia evaluates the ability of a novel protein assay to detect and analyze blood-based biomarkers of dementias, including FTD. Blood Biomarkers as…
Former U.S. Rep. Wexton, Living with PSP, Featured in “Brain & Life” Magazine
Jennifer Wexton, a former member of Congress who stepped down after revealing her progressive supranuclear palsy (PSP) diagnosis, was featured on the cover of the April/May issue of Brain &…
Dear HelpLine: The GUIDE Model and FTD
Dear HelpLine, My neurologist’s office recently told me about something called GUIDE, for people with dementia. I’m wondering if this program could help with FTD. Where can I learn more? …
Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment
Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was…
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