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AviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy,…
AFTD Founder Helen-Ann Comstock, 1933-2025
Helen-Ann Comstock, who founded AFTD in 2002 to ensure that no other family would have to endure FTD without adequate resources, information, and support, died on July 30. She was…
The Road to Timely and Accurate FTD Diagnosis
Accurate, early FTD diagnosis is crucial – for appropriate care, improved quality of life and disease management, adequate support for caregivers, better informed decisions around family planning, and access to…
August 23, 2025: In-Person Meet & Greet in Sparks, Nev.
AFTD Ambassador Scott Oxarart invites anyone impacted by FTD to join others on the FTD journey for a two-mile walk beginning at Nevada Veterans Memorial Plaza in Sparks (300 Howard…
AFTD Webinar: Sharing Your Story to Make a Difference — How to Connect with Legislators and Create Change
Cuts to federal programs are threatening the support systems that people living with FTD and their families rely on. Now more than ever, your voice matters. In this AFTD Advocacy…
Guest Feature: Forget Me Not
The following Guest Feature was written by Jessica Powers, who is a care partner for her mother, Michelle. “Jessy, look what I planted for you. I know how much you…
Lifestyle Changes Can Improve Cognition in Older Adults at Risk of Decline, Alzheimer’s Study Finds
Lifestyle changes, whether structured or self-guided, can improve cognition in older adults at risk of cognitive decline, according to the results of the Alzheimer’s Association’s US POINTER study. Structured Lifestyle…
AFTD CEO Susan Dickinson to Retire in May 2026; AFTD Board Leading Search for Successor
When Susan L-J Dickinson was hired to lead AFTD, the organization had just two other part-time employees. Much of its day-to-day work was done by a small group of passionate…
Tips & Advice: Brain Health and FTD
While no treatments have yet been approved for any type of FTD, emerging research is beginning to suggest that carriers of FTD-causing gene variants may be able to slow its…
Genetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue
A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be offered to everyone diagnosed with FTD, underscoring the increasing number of trials for…
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