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Book About Family’s FTD Journey Helps Raise Funds for AFTD’s Mission
“No Fault of His Own,” a novel released this summer, was the focus of a recent AFTD fundraiser organized by its author Gina Biskupic, a speech and language pathologist and…
The Lived Experience of FTD: Talk Therapy in FTD – Risks and Benefits
The following article was written by Anne Fargusson, RN, a member of AFTD Persons with FTD Advisory Council. You can learn more about Anne and her colleagues by visiting the…
Ferrer PSP Drug Receives Fast Track Designation from U.S. FDA
Spanish pharmaceutical company Ferrer announced that its experimental drug for progressive supranuclear palsy (PSP) has received a Fast Track designation from the United States Food and Drug Administration (FDA). …
Leading FTD Expert Dr. Bruce Miller Interviewed on “Big Brains” Podcast
Bruce Miller, MD, was a recent guest of the University of Chicago podcast “Big Brains,” sharing his experiences observing people with FTD. He discussed the need for a new way…
AFTD Joins Lawmakers to Advance Dementia Awareness in California
Above, L-R: Emma Heming Willis, AFTD Ambassador Terry Walter, Calif. State Senator Roger Niello, and AFTD volunteers Jeanine Walter Misirli, MD, and Kristine Golden, PA-C SACRAMENTO, CA – The…
Dementia Action Alliance Publishes Updated Guide to Living with Dementia
The organization Dementia Action Alliance (DAA) has released an updated version of “Pathways to Well-Being with Dementia,” a manual of practical tools, strategies, and insights to support well-being with dementia.…
Advancing Hope: Early-Career Awardees of AFTD Research Grants are Making Strides!
Did you know that AFTD currently has six active research grant programs funding FTD research at all stages, from discovery research to clinical trials? Three of these programs are focused…
AFTD Webinar: From Symptom Onset to Diagnosis — Improving the FTD Diagnostic Journey
FTD’s complex symptomology means it is often misdiagnosed. This webinar explores what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early…
AFTD Grantee Study Assesses Protein Changes Which Could Help Track FTD Severity
A study published in Nature Aging looked at a large number of proteins in cerebrospinal fluid (CSF) to see if combinations of changes in these proteins could be used for…
Late FTD Advocate Susan Suchan Spotlighted in New Documentary
Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan,…
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