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Help & Hope
Dear HelpLine: Social Security Benefits for People with FTD
Dear HelpLine, My dad is 55 and had to leave his job after he was diagnosed with…
Guest Feature: Creating Opportunities of Liberation and Hope on the FTD Journey
The FTD journey is difficult for families due to its distressing symptoms and the sweeping life changes…
In Memory of George F. Sidoris: A Siblings’ Labor of Love
More than 20 years ago, siblings Christine and George J. Sidoris first noticed troubling changes in their…
Advancing Hope: AFTD Attends AAIC 2024.
Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry…
The Lived Experience of FTD: Getting to Know the Persons with FTD Advisory Council: Deb Jobe
Formally chartered in 2020, the Persons with FTD Advisory Council works to ensure that the insights and…
Advocacy Update: FTD Awareness Week
With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or…
AFTD Volunteers Achieve FTD Awareness Week in 5 More States
In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness…
Dear HelpLine: Transitioning to Facility Care
Dear HelpLine, We have just made the difficult decision to move my mom into facility care not…
Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop
On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the…
Tips & Advice: Finding Answers – FTD Research and You
When Damian McNamara, a staff writer for WebMD, learned that his cousin had been diagnosed with ALS…
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