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Help & Hope
Guest Feature: Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower
For persons diagnosed with FTD, simply existing in public can be challenging. FTD’s symptoms can cause difficulties…
The Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
Dear HelpLine: Looking for Support Options
Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support….
Advocacy Update: Rare Disease Day and FTD
Rare Disease Day, which occurs annually on the last day of February, was established by the European…
Guest Feature: Somebody’s Sister
FTD is an aggressive disease that disrupts people’s lives and relationships, with families often unsure what they…
Viewpoints of FTD: Addressing Barriers to Diagnosis, FTD Care, and Research Participation Faced by Black/African Americans
In 2011, researchers estimated there to be 50,000-60,000 cases of FTD in the United States. Today, however,…
Dear HelpLine: What to Look for When Considering Facility Care for a Person with FTD
Dear HelpLine, We have reached the difficult decision to look for long-term facility care for my sister,…
Guest Feature: Capturing Voices – Considerations When Writing YOUR Book
The grief caused by FTD is persistent, lasting well beyond the end of the FTD journey for…
Volunteer Update: AFTD Ambassadors Welcome New Cohort
The AFTD Ambassador program was launched in 2019 as a new opportunity for AFTD’s volunteer leadership. Since…
Advancing Hope: AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD
The second annual AFTD Holloway Summit, focused on biomarkers for FTD, was held from November 30 to…
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