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Help & Hope

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Advancing Hope: AFTD Holds Inaugural Research Roundtable Conference to Convene Stakeholders in FTD Research

The FTD Research Roundtable is a new initiative at AFTD to enable discussion and shared problem-solving across…

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Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research

FTD science has come far in the 21 years since AFTD began its mission, with scientists closer…

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Help & Support: Sleep Issues in FTD

Changes to sleep routines are a common challenge for the person living with FTD and their care…

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Advancing Hope: AFTD Staff Present at the 2023 Alzheimer’s Association International Conference

Senior Director of Scientific Initiatives Penny Dacks, PhD, and Director of Research and Grants Debra Niehoff, PhD,…

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Guest Feature: My Ohana – Reflecting on The Close Bonds We Build on the FTD Journey

FTD symptoms and the stigma attached can make navigating the disease an isolating experience for people diagnosed,…

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Advancing Hope: AFTD’s Director of Research Engagement Attends Cure VCP Conference

Shana Dodge, PhD, AFTD’s Director of Research Engagement, spoke at the 2023 Cure VCP Connections Conference, held…

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Guest Feature: That Picture, That Movie, That Song – Connecting with My Dad Beyond FTD

FTD can distort one’s personality and behavior in unpredictable and upsetting ways, and it can be hard…

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Advocacy Update: AFTD Ambassadors Offer Insights at July NAPA Meeting

At the most recent meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council, AFTD Ambassadors Katie Zenger and Terry…

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Help & Support: Genetic Testing and DNA Banking

The decision to undergo genetic testing for FTD is deeply personal. Many want to know their genetic…

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The Lived Experience of FTD: Tracking Changing Behaviors in FTD

For people living with an FTD diagnosis and their care partners, keeping track of the changing behaviors…

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