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Volunteer Update: AFTD Ambassadors Welcome New Cohort

The AFTD Ambassador program was launched in 2019 as a new opportunity for AFTD’s volunteer leadership. Since…

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Advancing Hope: AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD

The second annual AFTD Holloway Summit, focused on biomarkers for FTD, was held from November 30 to…

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Dear HelpLine: Dealing With Genetic Uncertainty

Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected…

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The Lived Experience of FTD: Grief on the FTD Journey

The following article was written by members of AFTD’s Persons with FTD Advisory Council, who work to…

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Tips & Advice: Navigating Apathy in FTD

A hallmark symptom of FTD, apathy can be particularly hard to deal with for persons diagnosed, care…

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Advancing Hope: AFTD hosts FTD Social at the Society for Neuroscience Annual Meeting

The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional…

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Volunteer Update: Hosting a Meet & Greet Event

By hosting a Meet & Greet on behalf of AFTD, volunteers can bring together people affected by…

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Advancing Hope: AFTD Manager of Genetic Initiatives Attends National Society of Counselors Annual Education Conference

AFTD’ Manager of Genetic Initiatives Kim Jenny, MS, LCGC, attended the 2023 National Society of Genetic Counselors…

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Dear HelpLine: Connecting During Facility Visits

Dear HelpLine, My mom has FTD and lives in a facility, and I am struggling to find…

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Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025

The scientific understanding of FTD has increased more in the past 10 years than in the previous…

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