What's New
Understanding the Path to an FTD Diagnosis
The FTD diagnostic journey currently averages 3.6 years. Being Patient recently highlighted the complexities surrounding FTD diagnosis, shedding light on why so many families face years of uncertainty before receiving…
Tips & Advice: Genetic Testing and FTD
A common question people may ask when a loved one is diagnosed with FTD, especially if there is a family history of dementia, is “Am I at risk too?” While…
AFTD Applauds House Appropriations Committees for Support of NIH, Dementia Research, and Family Caregivers in FY 2026 Labor-HHS Bill
The Association for Frontotemporal Degeneration (AFTD) thanks the House and Senate Appropriations Committees for its release of the Fiscal Year 2026 Labor, Health and Human Services, Education, and Related Agencies…
Genetic FTD News Drives an Artist to Pick Up Paintbrush Again
Genetic FTD can impact family members in sometimes beautiful ways. The Osage Oracle recently told the story of Iowan Alyssa Nash, a young artist who was found to have the…
Dignity Care as an Essential Dementia Guidepost
Dignity care is the practice of ensuring a loved one maintains a sense of self and self-respect. As she recounted in a recent AARP article, Lois Seed has guided every…
Advancing Hope: AFTD Staff Attend the Clinical Trials in Alzheimer’s Disease (CTAD) Conference
Dr. Penny Dack’s, AFTD’s Chief Scientific Officer and President of the FTD Disorders Registry, and Dr. Shana Dodge, AFTD’s Director of Research Engagement attend the Clinical Trials in Alzheimer’s Disease…
Honoring Lives Touched by FTD: The 2025 In-Memoriam Video
AFTD invites you to view our first In-Memoriam video, a heartfelt tribute honoring the lives of those we lost to FTD. This compilation features photographs shared by families across the…
Memory Care That May Slow Dementia Decline
Memory care snapshot: As Robin Latimer lined up her putt on the portable green at Alice’s Clubhouse, she cracked a joke that made everyone laugh. When the ball dropped, applause…
Advancing Hope: AFTD and partners Award $2.1 Million in New FTD Diagnostic Biomarkers Initiative
AFTD currently has six active research funding programs to support FTD research at all stages, from discovery research to clinical trials. The newest of these programs is the FTD Diagnostic…
From Sean 1.0 to Sean 2.0: One Couple’s FTD Journey
When Sean Durbin noticed he was struggling to find the right words during conversations, he knew something was off. The once-boisterous extrovert who thrived at the center of family gatherings…
