June 19, 2024: New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00 to 7:30 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this…
Read MoreNew York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
Read MoreStudy Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can influence the risk and severity of FTD. People who have an inherited genetic variant in the GRN gene must contend with a significantly elevated risk…
Read MoreN.Y. State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced and sponsored a bill to the state Senate that, if approved, would create a statewide registry of FTD diagnoses. Sen. Hinchey announced the bill on May 15 at the state capitol building in Albany, joined by AFTD CEO Susan L-J Dickinson, Emma Heming Willis, and AFTD volunteers, advocates,…
Read MoreHope Rising Benefit Honors Dr. Bruce Miller, Raises $1.9 Million for AFTD’s Mission
The eighth annual AFTD Hope Rising Benefit, held April 4 at New York City’s Ziegfeld Ballroom, raised more than $1.9 million to support AFTD’s mission of helping those affected by FTD and driving research toward a cure. Bruce Miller, MD, the director of the Memory and Aging Center at the University of California, San Francisco,…
Read MoreNew York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry
ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s first statewide Frontotemporal Degeneration (FTD) Research Registry. The registry would help educate doctors on FTD — among the most common and yet little-understood forms of dementia — provide insight into the number of FTD diagnoses across New York,…
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