National Meet & Greet for LGBTQIA+ Adults Confronting FTD
LGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences. AFTD will host a national, virtual…
Read MoreNational Meet & Greet for College-Aged Adults Confronting FTD
AFTD will host a national, virtual Meet & Greet on June 15 for those aged 17-26 who live with and help care for a person living with FTD. We will discuss some of the particular struggles for those of us in this age group and also introduce a new National Support Group for Young Adult…
Read MoreVolunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can be hard to find even after a diagnosis. An AFTD Meet & Greet can help fill those gaps. Meet & Greets are volunteer-hosted events gather…
Read MoreAFTD announces 2023 Pathways for Hope Pilot Grant recipients
AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD research, laying the groundwork for additional follow-on support from a larger funder. Pathways for Hope Pilot Grants target early-career researchers carrying out basic (discovery) research and translational research that is the first step in advancing promising science from…
Read MoreTips & Advice: Dealing With the Loss of Empathy
One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons diagnosed to become uncharacteristically indifferent towards other people, including loved ones. This loss is often accompanied by a lack of emotional expression, commonly displayed as a flat affect or blank stares. Family and friends must remember that these…
Read MoreMay 15, 2024: TEDx Miami’s “Stories of Resilience,” featuring Dr. Leila Allen
Dr. Leila Allen, a neuroscientist and the founding director of the behavioral neuroscience undergraduate program at Florida International University, will be speaking at a TEDx Miami event called “Stories of Resilience.” Dr. Allen’s talk will focus on brain resiliency and will address both FTD and Alzheimer’s. The event will take place on May 15 from…
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