The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, June 26, 2025
12-1 p.m. EDT

HEALTHCARE PROFESSIONAL WEBINAR

Speech Language Therapy:

Stephanie M. Grasso

A Promising Practice in FTD Treatment and Care

Becky Khayum, M.S., CCC-SLP

Dr. Anna Volkmer

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Perspectives in FTD Research Webinar: Amplifying Your Voice in FTD Research — Why Am I Asked So Many Questions?

When studying FTD, researchers ask a lot of questions. Research participants may find themselves thinking, “Why do you need to know all this information?” This Perspectives in FTD Research webinar,…

Novelist Julie Otsuka Shares Mother’s Journey with FTD on “Fresh Air” Podcast

Best-selling novelist Julie Otsuka discussed how her mother’s FTD diagnosis inspired the main character of her new novel The Swimmers in a recent episode of NPR’s Fresh Air podcast. Otsuka…

Nicole Petrie Sports Illustrated Swimsuit Finalist - WEB FB TW

“Sports Illustrated” 2022 Swim Search Finalist Raises FTD Awareness in Honor of Mother

Model Nicole Petrie is raising national FTD awareness and using her modeling career to be “a voice for caregivers all over the world” after being named a 2022 Sports Illustrated…

Spotlight On…Helen-Ann Comstock, AFTD Founder

To mark International Women’s Day, we’re spotlighting the impactful work of AFTD Founder Helen-Ann Comstock, who created AFTD both to honor her late husband and to support other families impacted…

FNIH Announces Neurofilament Project Designed to Improve Diagnostic Process for Familial FTD

The Foundation for the National Institutes of Health (FNIH) Biomarkers Consortium, in partnership with AFTD, recently launched a new project designed for early detection of hereditary forms of FTD and…

Rare Disease Day 2022: Think FTD

February 28 marks Rare Disease Day, an annual campaign intended to increase awareness of rare diseases and their impact on individuals and families. While FTD is classified as a rare disease,…

John Q. Trojanowski, 1946-2022

On February 8, John Q. Trojanowski, MD, PhD, a founding member of the AFTD Medical Advisory Council (MAC), died at age 75. Dr. Trojanowski was a groundbreaking figure in the…

Babson College Basketball Team Raises FTD Awareness in Honor of Player’s Late Father, Who Had FTD

Babson College men’s basketball player Spencer Cline and his team raised funds in support of AFTD’s mission and dedicated their Feb. 12 game against Clark University to Cline’s father, who…

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